Hi there , having joined the head and neck cancer forum 5 weeks ago after them finding HPV + ca cells in my neck lymph nodes they stated hunting for the primary tumour . MRI of throat showed nothing but full body PET scan showed activity in my lower rectal area and lymph nodes in stomach . Colonoscopy showed no mass but after examining the images in more detail they think that it could be anal cancer now . Has anyone else come by a diagnosis in this way , I’ve already been referred to a CUP team in our local hospital who I’m seeing on Wed but the nurse that I spoke to this afternoon said she thought that I would be referred back to them now . Really worried as first found cancer in 30th Sept and everything seems to be taking so long betweeen appointments I just want to start some sort of treatment or find out what my options are . Meanwhile have low tummy and back pain and going to the loo so much - I know anxiety can be driving this as well . Any advice welcome thank you . Marilyn
