Anal Cancer - start of my journey

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My journey started with a visit to the doctors with pain in my bottom area; within the month I had an oncologist assesment (suspected cancer) followed by  CT/MRI Scan (which found in addition to tumour in anus, shadow on the lung and suspected liver mets). Biospy on anal canal confirmed cancer (T2N1M? Squamous cell carcinoma of the anal canal), a Fibreoptic Bronchoscopy resulted in T2N?M? Adenocarinoma of the lung.  

I have an Edoscopy test next week to determine what is going on with my liver.

4 weeks ago had a couple of lumps come up in the veins of my right leg - X ray confirmed blood clots so now on Apixaban blood thinners.

Just when I thought nothing else could go wrong with my body I had blood in the urine which GP suspected was an infection.  After a week of antibiotics blood still present and as I had no other symptoms of an infection I have been fast tracked for a cystoscopy.

So here I am 3 months since first visiting the doctor about to start this Monday on 5 1/2 weeks of Chemoradiation and feeling like my world is about to end.

I am trying to stay positive, like many on here I have up and down days, my anxiety levels are off the scale with the waiting for tests to determine what is going on with the liver and what the treatment plan will be for my lung cancer.

I am finding it helpful through this community to know that I am not the only one on this journey and that I can find light at the end of the tunnel.  Already got myself a Sitz bath; so grateful I am retired and have a caring husband to hold my hand through all of this and its good to read all the positive posts here.

  • Hi  

    Welcome to the club no one wants to join. You have come to the right place everyone is either going through it or been through it and out the otherside. We are all here for you however you need, tips, advice or just a listening ear to let of steam. Good luck for monday, the treatment is very successful. Your world isnt ending you are just having a little pause to get your health back. Sending hugs. Xxx

  • Hello  

    This post didn't come up on my feed but it has today - I am so sorry to hear of all the issues that you have going on at the moment, no wonder you are are so anxious.  I remember vividly being told my diagnosis and the shock, denial and terror that followed, we can all empathise with that.  I am so glad you have your husband beside you to support and comfort you.

    All the waiting around whilst all the tests and investigations are carried out seems to go on forever but behind the scenes there are weekly MDT meetings (multi-disciplinary team) where they have collated all the information and decided how to treat you and what to tackle first.  And now you have a start date, we will all be thinking of you on Monday. 

    The whole journey is such a rollercoaster and all of us who have had a cancer diagnosis will empathise with how you are feeling right now.  But all the members on this forum are very supportive of each other, so if you need that extra virtual hand hold, just let us know.

    Big hug, I am thinking of you.

    Irene xx

  • Hello JustJ40d64b,

    Really sorry to hear about all that you are going through at the moment. It’s completely understandable that your anxiety levels are off the scale, given how everything has escalated over the past 3 months. That’s an awful lot to get your head round and you must be in a constant state of worry waiting for further tests and treatment plans. It all sounds quite overwhelming.

     I want to wish you well for the start of the chemo radiation part of your treatment on Monday. Hopefully you will have a really supportive team to help you through all of this. I went through treatment a year ago for T2N1 anal cancer and it was successful. 

    I hope you get further plans in place very soon when all of your procedures are completed and your results are reviewed. The ‘not knowing’ phase is particularly stressful as the mind can run riot, but having a plan can definitely help. 
    Absolutely everything crossed for you and it’s good that you have a supportive husband. 

    Sending hugs xx

    1. Welcome to the group. My husband has bowel cancer and lung cancer. Unfortunately for him it was found too late
  • So sorry to hear that.  I had my liver biopsy on Wednesday and now have an anxious wait to find out the results.

  • Hi  ,

    Welcome to our little corner of the MacMillan Online Community although I’m so sorry to hear of your recent diagnosis. You’ve had an awful lot to process in a relatively short time so there’s no wonder your anxiety is through the roof & staying positive is really difficult sometimes but it’s what gets us through isn’t it?

    I hope that the tests you’re waiting for come through quickly & wishing you well with your treatment. I’m pleased you have the support of your husband. 

    If you’ve any questions at all that you think we may be able to help with please feel free just to ask. We’re here to support you however we can.

    Nicola