Recurrent anal cancer

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Hello

 I have just joined this group and hoping for advice & support

My mum who is nearly 79 got diagnosed with advanced anal cancer in Oct 23, she underwent an op to debulk the tumour and have a stoma fitted Jan 24 and then went on to have 5 & 1/2 weeks of chemo radiation which ended March 24! The tumour responded great to treatment and she was given the all clear last June…..but unfortunately the 6 month scan has shown thickening of the tissue and after biopsies, it’s confirmed it’s cancer in the same area! We have had an appointment in Christie’s for APR surgery, but it’s too big an op for her age and fitness levels! We have been referred back to an oncologist to discuss chemotherapy to try and control it

Its a very stressful time for my mum as she lost her partner of 43 years suddenly last Christmas 

Thanks for reading xxx

  • Hi  ,

    Firstly welcome to the MacMillan online community although I’m so sorry to hear that your mums cancer has returned & for everything you’re going through as a family. 

    I don’t have any experience of chemotherapy to control a recurrence of anal cancer but maybe when your mum has her appointment with oncology it would be worth asking about any clinical trials or immunotherapy that are going on at present. I was part of a clinical trial but mine included radiotherapy which is obviously not an option for you mum having al ready been through the standard treatment for her original diagnosis. 

    Hopefully someone that can be a little more help will see your post & be able to advise.

    Nicola 

  • Thankyou for your reply, I will definitely mention it to the oncologist 

    xx

  • Hi suzzie

    Just wanted to say welcome to the forum. I'm so sorry about your mum. I am no help for your question but like Nikki65 said hopefully someone who can help will pick up on your post. Sending hugs. Xx

  • Hello Suzzie

    What a difficult time for you all, and I am so sorry to hear what has happened to your Mum.  Nicola has given some really good suggestions regarding immunotherapy and trials.  The only other thing that occurs to me, is your Mum's health really poor?  If so I can understand if they don't want to risk major surgery but if not, I think I would be asking for a second opinion.  I should stress I am not medically qualified in any way and I may be completely wrong, I am just trying to think of all the possible avenues for her.

    Please let us know how you get on, I am sending her (and you) a huge hug

    Irene xx

  • Thanks Irene, my mum has decided she doesn’t want to have a major op (even if they would deem her fit enough)…thinks she’s fed up of being in and out of hospital! Hopefully she can have some treatment to control the cancer I’ll keep you posted 

    xxx