Awaiting biopsy results

Hi Paddybud,

So sorry about this dang freakin' awful cancer that's got you too- but not for long! The whirlwind of pre-treatment isn't an altogether bad thing, it gets you maneuvered into the starting gate before you know it.

I'm a year and a half out of treatment, NED (no evidence of disease) so considered in remission. Only a single scan, at the one year mark, and the for-the-rest-of-our-lives joy of DREs every 6 months.

I found this community when I was going through the recovery period. I wish I'd found this lot sooner, but better late than never. I'm so grateful to have supportive friends here who get it.

It sucks to have anal cancer, but if you've gotta, this is the place to be.

Hugs

Suz

Hiya can I just ask what DRE stands for? Thank you 

Glad to hear you’re still NED

The wait is torture I know.  But what happens is that all the professionals treating you have MDT (multi-disciplinary team) meetings, normally once a week.  And only once all the necessary investigations are done will they put together a plan specifically for you based on all that information.  And it does take a few weeks. 

Your short-term plan sounds good, whatever helps you get through.  I know we all wanted this cancer gone, and yesterday please!

Thinking of you.

Irene xx

Hi MagMoo  DRE is the abbreviation for digital rectal examination, something we’re all too familiar with unfortunately!

Nicola 

• Cheers just couldn’t think

No problem MagMoo  I suffer from intermittent brain fog, possibly hormone or age related I’m not quite sure which so seriously I know where you’re coming from

Nicola 

Hi Suz

Thank you for your encouraging message. Part of me is grateful my consultant was so blunt initially after taking biopsies but also I wish he had been a little more diplomatic to save all the worry. Although I believe I would have worried anyway as its in my nature to. 

It's wonderful that your are now through the other side of the journey and I trust you are doing really well? 

I'm so scared of the journey ahead. work has put me on hold, well, actually they have given me my p45 but have said they will welcome me back once I am on the road to recovery. 

So much to think about but I know it's one step at a time. 

Hugs 

Paddybud

Morning Irene. 

I have to admit I didn't enjoy the MRI much not least because the music they played through the headphones was blooming awful!! 

The nurse assistant said that mri's are typically taking up to 6 weeks at the moment however they had fast tracked the results because my consultant wants to get me started on recovery ASAP which is lovely and reassuring.

I am just finding myself panicking if I think about things too much. My Darling Dad is being such a pillar of strength and came with me yesterday even though he had an eye operation the day before. I was driving. 

My aunt is coming up next week to help with possible appointments and support. 

I'm currently in my pj's with my cat asleep on my lap. 

All the best xx

Paddybud

Hey MagMoo.

Sorry for delay in reply to your supportive and kind message. 

I am so pleased that you are finding your way through the treatment and have been given such encouraging news.

I too went to the doctor back in May with external painful piles then again a few months later thinking they were internal piles but the Dr found something else instead that concerned him. 

Within the last 8 days I have had biopsies a ct scan and an mri scan so my team are on it. I can't describe the fear and uncertainty inside but I know I will face it and deal with it as it comes what other choice is there? 

All the very best to you and I look forward to hearing how things are going with you. 

Xx

Paddybud