Tired...oh so tired!

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Hi all, I am now 5 months post radiochemotherapa, and have had my first scan which showed no sign of the tumour (feel blessed) but I am absolutely knackeed some days, feel woozy, woolly head, that kind of thing and I wondered if any one else has had the same exerience. Of course the negative thoughts come, what if....but I thihk that's only natural. I am hoping that this is just a late side effect. 

Ann

  • Hi Ann,

    I think it’s to be expected considering what your body has gone through let alone the emotional rollercoaster that we experience. If you find negative thoughts too overwhelming I suggest speaking to your doctor who may be able to prescribe medication for a short period until you are able to cope. Brain Fog also can happen but it will get better.

  • Hello Ann,

    Great news that all was well on your first scan, hopefully the start of your healing. 

    I think feeling really shattered afterwards is something a lot of us feel and apart from the physical battering your body has had, the emotional cost is huge.  The worry and anxiety of waiting for scans and appointments can be overwhelming so I think your exhaustion is part of that. My suggestions would be to try to go with it for now; have a sleep if you can during the day, eat well. Consider this as your convalescence.

    You could have a talk to someone on your treatment team or GP, or at Macmillan, and perhaps see if there is a late side effects group in your hospital - I can't remember what these groups are called, I'm sure someone here will let us know. Then I would give yourself time and do whatever it takes to ease you through.

    If you are still feeling like this at your next appointment with oncologist, mention it to them.

    I wish you all the very best with your recovery, Ann. Take things easy. x

  • Hello  

    Getting clear scans can stir up all sorts of contradictory feelings, on the one hand huge relief that things are clear, and on the other bewilderment that we don't feel well as we expected given the result.  It took me a long time to recover and even now, more than four years down the line I still get fatigued and have to put my feet up.  I hope you have ample opportunity to rest when you need to and I hope your woolly head diminishes too, that part did for me.

    Keeping everything crossed that you start to feel better soon.

    Irene xx

  • Hi Ann ( ),

    Firstly that’s great news about your scan results.

    The fatigue from the treatment came & went for some time for me. I went back to work on a phased return around 5-6 weeks post treatment but after doing 2-3 days at work I would sometimes have to have a couple of days doing absolutely nothing as I was wiped out. The treatment definitely also left me with brain fog! 

    I hope you begin to feel better soon. 

    Nicola 

  • Hello Ann, 

    I’m nearly 5 years on and I still have times when I am inexplicably tired. Your body has just been through so much it will take time to get back to some sort of normal. Be kind to yourself and don’t rush. This healing time is so very important. 

    We all have “Scanxiety” even years on. But this is an eminently very treatable type of cancer and this is very positive. Hoping all goes well for you and everyone on here is so helpful for when we have a little wobble!

    Best wishes

    PPR x