Ist systemic chemo for lymph nodes mets

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Good morning

Well that was a very long day.

Started chemo session at 10 am and finally got finished at 6pm. I was prepared for a long session after the IV cisplatin last year, but this was a new record.

Carboplatin and paclitaxel given in one session here and the vein gave up on the last bottle. New cannula fitted and treatment finally finished. 

Surgery will fit a shoulder port before next treatment in April, so problem should be resolved and hopefully a quicker safer delivery.

Been in hospital since Wednesday, last injection at 4pm, then home.

Nice shower, bag change, salmon, homemade cheesecake, cuddle cats, then own bed.

Been doing exercises on one leg for neuropothy but will start massage and rebounding tomorrow.

Wishing everybody the very best day.

Ally xx

  • Hello Ally,

    What a long and tough day. Was thinking of you and wondering how you were getting on . All sounds pretty exhausting and hopefully will be slightly easier when the port is fitted.  
    A huge well done on getting through this round and am sure you can’t wait to get home this evening.

    I’m sure a few much needed creature comforts will be more than welcome. 

    I hope the rest of the day goes as smoothly as possible and that you’re able to rest up once you’re home. 
    Big hug to you xx

  • Hi Ally

    That sounds like a really really long day, I bet you can’t wait to get home and into your own bed.

    My cats say hi to your cats BTW. Good luck with the exercises and let us know how you get on with those.

    Sending hugs

    Monty xx

  • Hello  

    Gosh, you must have been completely exhausted and then you had the drive home; hopefully you had your partner as company and chauffeur.  And there is nothing like getting home to your own bed to sleep.  a

    It sounds as if you really need that port which should make infusions (and blood tests) a lot easier for you.

    I had neuropathy during treatment, however I am happy to say that it did wear off except for my feet; even now they burn, especially at night, but I just stick them out from under the duvet to cool down.  I am hoping yours is a temporary reaction too.

    We are all thinking of you and well done for getting through that first long session; I hope you had lots to keep you occupied!

    Big hug

    Irene xx

  • Crikey  that was a long day for sure, I bet you’re bushed!

    Hopefully the shoulder port will make things easier ready for your next treatment. 

    There’s nothing quite like your own bathroom & your own bed is there? 

    Rest up lovely.

    Nicola 

  • Afternoon PEB24 

    I expected the chemo to be a marathon session after the last lot, but this really took the biscuit.

    The big difference this time is I stayed in hospital, arrived on Wednesday morning and discharged after last injection on Friday at 4pm. The Oncology ward really don't like you to leave immediately after treatment, so I agreed to stay. 

    The ward was so friendly, I actually enjoyed having a good relax for a few days. Moving forward it will be a 2 day stay, with steroids to take the night before.

    The port will be fitted on the 24th, so next session on the 9th should be a breeze.

    So pleased you are making some progress with your back pain, if my sciatica had continued I would have been very unhappy and distressed. Well done for pushing to get answers and sharing your experiences.

    Big hugs to you.

    Ally xx

  • Afternoon Monty

    Shower, food, cat cuddles, bit of telly then bed.....heaven.

    Feeling really energised this morning, pottering in the house and garden, bit of lymphatic breathing and some bouncing on the trampoline.

    My kitties are sending hugs.

    Ally xx

  • Afternoon Irene

    Due to the hospital stay I felt really chilled. 

    I was sharing a room with  a lady I met when I had my lymph nodes removed. Picture the scene, I speak virtually no Bulgarian, she does not speak English, but we bonded over dubbed Turkish reality TV.

    My PA came for me at 4pm on Friday, 90 minutes later back to our little piece of heaven.

    Bouncing about today and feeling great. I know you did a lot of walking during your treatment and I think it does help the neuropathy.

    Port fitted on the 24th, so hopefully the next session will be easier.

    Big hugs

    Ally xx

  • Thank you Nicola

    Own shower and bed felt lovely. Little lie in, then soft boiled eggs and soldiers this morning.

    Full of energy so pottering and bouncing about. I think the steroids are doing their job.

    Sorry to hear about your MRI scan and hope things get rescheduled soon.

    Ally xx

  • Fantastic to hear your feeling full of beans today Ally. This MRI debacle is becoming more of a pain than the actual pain!! 

    Enjoy your weekend.

    Nicola xx

  • Hi Ally,

    Definitely a marathon for you and tough having to stay in hospital for your treatment. As ever you seemed to make the best of it and even inject some humour with the reality TV scenario which made me chuckle.

    I hope that you have been able to take it easy ( although I know that’s not your style) and was impressed that you were bouncing so quickly on return home.  An inspiration as always. 

    Other than the relief of being home, I very much hope that you’re doing as ok as possible. 

    Big hug to you xxx