I finished chemo radiotherapy in October. I have been experiencing excruciating pain in my right shoulder/shoulder blade since then. I had not had this pain prior to treatment. I called the hospital and a nurse rang me back. She advised me to contact the GP. She didn’t think it was anything to do with the treatment. I didn’t think to ask if she had put it past a Dr or an oncologist. The pain comes on suddenly and is so painful.
Has anybody else experienced anything like this?
Hi AW3 ,
Although I haven’t experienced this particular issue myself I would do as advised & run it past your GP, don’t let them brush it off either, hopefully it’ll be nothing to be concerned about but considering what you’ve been through of late understandably your mind won’t be put to rest until this is checked out properly so insist that it’s is. I hope you get some answers soon.
Nicola
Hello AW3
I haven't but it does sound as if it should be checked out. Your GP could help with pain killers but am I right in thinking you are due your three month check-up by your treating team any day now? If you are it is a good opportunity to bring it up with the oncologist (not a nurse) then. If your check-up isn't due and your GP isn't helpful I would call the hospital again. It may well be nothing to worry about but I would want it investigated to make sure.
Please let us know how you get on.
Irene xx
I contacted the GP surgery and I have an appointment next Friday to see the nurse I honestly don’t know what she’ll be able to tell me? I am thinking all sorts in my head which isn’t good. Nobody knows what you go through after a cancer diagnosis as every little twinge anywhere in the body makes you anxious.
thank you for your reply. I was diagnosed late July and haven’t felt able to post anything until now. Although I do have a read on here and it does help to know you’re not the only one going through this hell that is cancer!
I do wonder if you’re ever the same again? At the moment I don’t feel I’ll ever be me again.
x
I am due an MRI in January then seeing the oncologist in Feb. I was thinking of contacting his secretary and ask her to inform the oncologist for his opinion. I just feel as I’m not having treatment now that I’m not a priority. As I explained to the nurse, I haven’t had these pains prior to treatment but she didn’t have anything to say really which made me feel rather sad.
Thank you for your reply and I’ll let you know how I get on.
x
Hello AW3
You have nothing to lose by contacting the oncologist's secretary. I wouldn't be happy seeing the nurse at the GP's surgery and although I am sure she is very good at sorting out 'normal' back pain your situation isn't usual and she might well ask if you have contacted your treating team as she doesn't want to give a diagnosis.
Most consultants don't mind being contacted by patients, I think they are well aware of what a cancer diagnosis does to people and understand the extreme worry we all go through.
I wish you lots of luck, please let us know how you get on.
Irene xx
Hi again AW3 , if that’s all your GP’s surgery has offered you then I would probably give your oncologist a call to see if you could be seen a little earlier than planned. Even in the midst of all of this the receptionist is obviously still reluctant to give you an appointment to see an actual Dr!! In normal circumstances then a nurse possibly would be first point of call for back pain etc., but yours are not normal circumstances, you’re dealing with a cancer diagnosis!! Both my colorectal surgeon & oncologist both made it clear to me throughout that should I need to be seen between appointments then all I had to do was call. You’ll not rest until this has been checked out so just do what you need to do.
I think any acute illness changes us to a certain degree forever, once recovered I tried to make a conscious decision not to let this rule the rest of my life, 6+ years on I do sit & ruminate a little too deeply sometimes but give myself a quick shake & do something to distract myself so I don’t disappear down that wormhole!
Nicola
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007