Partial response

Jlan 4 hours ago

2 replies
41 subscribers
27 views

Hi,

I completed my treatment at the end of August. My 3 month scan showed partial response. I have my 6 month scan in a couple of weeks. I am sick with worry as I have started to feel things again and know if the 6 month scan doesn't show complete response then my option is Abdomino perineal resection (APR).

I have researched this on the Internet (I know you shouldn't) and I don't think this is something I could do and my headspace at the moment is I just won't do it. It's hard to talk to anyone as they just say be positive it will be fine, but they don't have the worry or feel what I can feel internally.

As much as I am trying to stay positive there is a part of me that is fearing the worst. Has any body not had complete response and have had to have / gone through an APR?

TIA

Mrs Vanilla 2 hours ago

Hello Jlan,

Not really able to help, but I know there are several people on this forum who have had APR surgery, so I hope someone sees your post and is able to give you the information and support you need.

I understand this must be a troubling wait for you, and not to raise false hopes but I do know sometimes people don't get a clear picture until the six month scan - the radiotherapy carries on working even after the treatment has stopped.

All the best xxxx

Irene75359 2 hours ago

Hello Jlan

This is such a worrying time for you, and Mrs Vanilla is absolutely right, there are people on the forum who had to wait until the six-month scan to get the all-clear as the radiotherapy keeps working for months after treatment ends.

That said, if it does come to surgery, there are quite a few forum members who have gone on to have an APR - we don't hear from them often because they are getting on with their lives. It is all too easy for me to say don't look on the internet (we are ALL guilty) but just remember that often information and research is way out-of-date, biased and sometimes just plain wrong.

I am hoping that those members with experience can reassure you.

Big hug

Irene xx

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