For anyone who needs to hear this…

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Hi All,

So, I returned from traveling to see my oncology team at the very end of April—that was 15 months post chemo-radiation and 13 months out of liver surgery (the final part of my treatment plan).  I had all great news, continuing NED, no concerns whatsoever.  I had looked forward to getting back to normal life, including engaging with y’all here, after the inevitable couple of weeks of anxiety I always experience entering that time prior to my appointments.  Well…yeah, I’ve been busy, so SO busy.  It’s the end of the school year and just about every single thing good that could happen the past couple of months for our family, has happened.

Meanwhile, I kept telling myself, “self, no one wants to hear how busy you are.”  And then I thought again, maybe here on this forum, there are some people who need to hear that, exactly.  I just want everyone who’s in the phase of diagnosis or treatment, and even the immediate recovery period, that it’s entirely possible to get back to the fullness of life over time.  I am up early, exercising, teaching my ballet classes, volunteering at the kids’ school, volunteering backstage at our ballet company’s spring showcase, lunches with friends, awards assemblies at the kids’ school, family birthday parties, supporting the kids at the district science fair, attending events and weddings with my husband, and cooking dinner nearly every day.  It’s possible, and I feel just about normal.  I have had some mild tingling in my left foot on occasion, but it doesn’t stop me from anything.

I fully understand that not everyone ends up as lucky in post-treatment, but if you’re wondering if you’ll ever get to the better side of cancer, wondering if you’ll be back to the things you love, know that it’s within reach, and at the very least, it absolutely gets better from diagnosis and treatment.  Diagnosis is shocking, treatment is hard, hard work, the immediate recovery is exhausting work, but then one step at a time, we somehow find our way back to the lives we love.  So may we all find ourselves “so busy” with normal life again!

Very best wishes to all,

Red

  • What a fabulous message Red! I'm glad you wrote it, and I am sure many others will be. So lovely to hear how 'busy' you are with life once again & wow you are very busy, i'm amazed by all you do!

    At this stage, just coming to end of treatment, I'll be looking forward to being able to do more things with my son again. I'll keep that fresh in my mind as the outcome I hope for and only wish for more to follow.  It can give us a new perspective on what matters and lease of life - Enjoy your wonderfully busy life Xx

  • Ah Red

    Life is so good, isn't it? 

    I am not the same as I was before but it isn't anything I can't handle.  I had the most amazing weekend with my young two grandsons whilst their parents were away.  They are six and nine and an absolute joy.  I put them to bed the other night and ended up in the big bed beside them telling them all about the time I joined them in the States for two weeks five years ago. My daughter and her husband did a three-month sabbatical touring in an RV, and they wanted to know all the detail about the places, the food, how one meal I ordered came and was so big it fed the five of us!  There were times I didn't know if I would ever enjoy occasions like this again, and yet here I am.

    What I can't do I don't fret about.  And like you I have some residual neuropathy in my feet that manifests itself in red-hot feet in bed, I just stick them out to cool down and sleep soundly.  And my other side effects have all being taken seriously and I am being treated by caring professionals.

    It is wonderful that your life is so full and busy and thank you for writing such a wonderful positive post that will undoubtedly help those going through a tough time.

    Irene xxx

  • Red, you are JUST what I needed to read with my coffee this morning! I'm older and slower than you, and even without stupid cancer would not likely keep a pace like yours, but just being able to garden and groom my pony and manage the long drive to visit my granddaughter every week is SO WONDERFUL!

    What a terrific message to take forward into a busy week.

    Thanks from Maryland, hon!

    Suz

  • Thank you so much for this Red, it's really uplifting and cheering to read. Bee xx

  • Love the good stories! So interesting about your feet Irene!  I get into bed and it takes half hour to warm my freezing feet and then during the night they are on fire and like you, out the bed! Nice to understand its all part of it lol.

    Carole

  • I absolutely love this post Red, thank you so much for taking the time to write this for those that are feeling so devastated & despondent at the beginning of their journey & for those at the beginning of treatment & for those at the beginning of recovery. Life IS good & it’s there to be lived doing the things that make us happy be that filling every moment or just taking time out to breathe in some fresh air. I’m truly grateful that you’re out there packing in so much living, you’re amazing & thank you for continuing to contribute here too. 

    Last but not lease huge, huge congratulations on the great results also, long may this continue. 

    Nicola 

  • Hi Red

    Ah yes I think we all need to hear this so thank you so much for posting.

    Yes life is good and its so good to hear you are busy loving your life and wow you are so busy! 

    I think when we have gone through this gruelling treatment and come out the other side even the simple things in life like a sit in the sunshine or a walk with my dog make me so happy.  I now have two grandchildren - a granddaughter 3 months old and my beautiful grandson born on Friday who I have visited today - life is blooming marvellous! 

    So thanks again for sharing how wonderful your life is.

    With very best wishes

    Carole x

  • Oh Carole SQUEEEEEEE!!!!!! New grandbabies are EVERYTHING!

  • I’m so glad you’re approaching the end of treatment!  As I’m sure you’ve read here, it might get a little worse before it gets better after treatment.  My approach was that, one thing at a time, I would add back the things that I’d fought so hard to have again.  It started with involvement with the kids school and activities more, in different ways, but has obviously expanded to every part of my life now.  “Normal+” (meaning normal AND some special things) is where I’m operating from now, and I hope you find your way forward to that, as well.

    Hugs,

    Red

  • Awwww, Irene, what an awesome weekend it sounds like you had with your grands!  How wonderful that you’re in a position again to help your kids by looking after the grandkids for a weekend.  I know how good it feels to support those who’ve supported us.  And funny story about your trip to the states, because yeah…portion sizes in the U.S. can be stupidly big, sometimes!

    I had a similar moment the other day, when I put my hair in a ponytail (yes, it makes a ponytail now!) and went for a run.  I felt the ponytail bouncing against the back of my head pretty much as soon as i hit the pavement, and I nearly stopped to cry.  It was a sensation that I didn’t realize had been missing for over a year, until I felt it again!  Surprisingly overwhelming and absolutely filled with gratitude for such a seemingly small thing.  In true “Red” fashion, no I didn’t quit my run to cry, but I did cry when I was done.

    Always the best to you!

    Red