Update, though still not started.

Hi Rainieday its good you have a start date, the time will pass quickly, also a plus that you like your oncologist i always think that helps and in a weird way makes things easier. You may have read it or been advised already but as you are having a picc i would buy a limbo sleeve for showering, i bought one from a recomodation on here and it was brilliant. Good luck for the 2nd. Sending hugs. Xx

Hello Rainieday 

I am so pleased that you have a rapport with your oncologist; it makes the world of difference when you are really at your most vulnerable and having so many things going in circles in your head.

Just to let you know, during pelvic radiotherapy I also had pelvic lymph nodes treated, and far be it from me to disagree with the experts - but I will anyway!  I have quite a few side effects from radiotherapy but have never had lymphodema.  And, in my years on the forum, I have only heard in mentioned a couple of times.  Other forum users, I am happy to be corrected!

That must be a relief that you have help with the transport, that's a long journey you have.  Remember your cushion!

Irene xx

I would agree Irene - I had no lymphodema, and I haven't seen it mentioned here either, and as you know we have a lot of side effects on this forum!

I've just bought a limbo sleeve from the link that was posted. really helpful. x

That's good to know Irene. Maybe I will get away without leg issues. Fingers crossed. Have cushion to hand

Rainie x

Another one. You give me hope.

Rainie x

Hi Rainieday , it’s great to hear you’ve a start date & also that you’ve a good relationship with your oncologist. I was lucky that I had a lovely oncologist looking after me & he answered endless questions for me (I’m an information is power kinda gal!). 

My chemo regime was infusion day one & oral capecitabine each day of treatment thereafter, my oncologist told me the oral chemo is gentler on your system but different Dr’s have different views I suppose.

I agree with the other members that have commented that lymphoedema isn’t something I’ve seen discussed here very often at all. Obviously this doesn’t mean it doesn’t occur but I hope you escape it too. 

I hope your planning scan went ok yesterday & the very best of luck for the 27th.

Nicola

Hello Rainieday,

 I had hoped you would have started treatment by now and the waiting must feel interminable but it’s good that you now have a clear plan and dates. 
It’s also good to hear that you have got some support with transport every other day as it sounds like a long round trip for you.

Your Oncologist sounds good and it’s so helpful to have a good rapport and clear explanations. 
I had lymph nodes irradiated and can say that I didn’t experience any lymphoedema so hopefully the same for you. 

Wishing you all the best for your picc line insertion and for the start of treatment. Just sorry that you’re having to undergo treatment again and feel for you.

xx