4th week symptoms

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Definitely over hump day but definitely finding things ramping up. My platelets are dropping (I have a DPDdeficiency which means my body cannot process the chemo so it builds up) so I’m on a two day chemo break to hopefully let things settle a bit. I’ve got extra blood test today and potentially a platelet infusion. They think because of this I am peeing and pooping a fair amount of blood. Also I’ve grown a haemorroid, which I never had before, which is really sore and I was surprised by as ive been having very loose poos since the start of treatment. I also feel like my bum hole has shrunk! To be graphic my poos are very thin now, but I feel like I’m passing a melon! Is this normal??

  • Hi  Skinney poos are definatley normal. X

  • Oh I remember that....saying to the nurse that it felt like I was pooping out a great big lump and then finding all that was in the bowl was a little skinny ribbon. Her response, as with everything I ever said to her, was 'that's normal'! x

  • Yes I tried pushing it out and that ended up being quite painful, nurse said it would have been the tumour I was pushing on and not a good idea to push so hard!

    x

  • Hello  

    I had haemorrhoids develop when I gave birth, but they disappeared for thirty-odd years only to come back with a vengeance during treatment.  I had diarrhoea during treatment but the constant loo visits (even though I wasn't eating much) meant they all reappeared and I still have them now, four years later.  And you have my sympathy, they can be really painful.  And the shrinking anus - yup to that too!  Hence the skinny poos.  Hopefully most of this should clear up when treatment ends, you really don't have long to go.

    I am sorry to hear about your DPD deficiency, however, the radiotherapy is the important part of treatment and there are quite a few on here who had their chemo stopped in the early days.

    We all take our basic bodily functions for granted until something happens (in our case the treatment) that interferes  with and changes everything.  But take heart, you really don't have long to go!

    Irene xx

  • Hi  , I’m really sorry to hear of your DPD deficiency & the issues it’s causing you but as Irene has said the radiotherapy is the mainstay of this treatment & should you have to stop the chemo try not to worry about it too much. I suffered with the shrunken bum too!! I think a lot of it was inflammation from the radiotherapy hence the skinny poos, the only difference being I had to take stool softeners really regularly to poo at all!  So I suppose what I’m saying is that compared to my own side effects the symptoms you have at the moment are normal. I hope you get your transfusion & feel better for it. You’re at the business end of treatment now but the end is definitely in sight. 

    Nicola