Hello everyone, and Happy New Year to you all!
Having completed my first cycle (of six) Paclitaxcel & Carboplatin chemotherapy on December 29th, here's an update on how it went.
The second treatment on December 18 went ok without any adverse effects, apart from it took three attempts to get the cannula in my left hand. This time I was more prepared for any constipation and took two Laxido sachets that day, plus one a day for the following five days. That worked well with no issues.
Interestingly, in four days I managed to raise my magnesium levels to just over normal through diet - adding bananas, avocados, chocolate (85% dark) and spinach. At the third treatment, I was disappointed to see the Mg level had dipped a bit, so I'm still working on that.
On December 29th, the cannula went in on the second attempt. The anti-sickness infusion went fine, but 20 minutes into the Paclitaxcel, I developed an extravasation where the drug leaked into my arm. The infusion was stopped and an area 24cm x 10cm from my wrist to elbow was swollen.
It felt tender, but was not unduly painful. The nurse outlined the area with marker pen and injected hyaluronidase in five places to neutralise the drug. The initial swelling subsided quite quickly thankfully. The rest of the infusion (40 minutes) went OK in my right hand.
That evening I was advised to apply heat and rest it. Five days on, the arm is improving and the skin is fine, just some bruising in the middle from the central injection. It's a rare complication of chemo apparently, but now I'm wondering whether to switch arms regularly for the remaining 15 treatments in my cycles. On December 30th, I went back for a check up. They were happy with the appearance of my arm. Their quick actions had prevented anything more serious, but I'm carefully monitoring things. The nurse mentioned the option of a PICC line, not sure about that yet...
I'll be seeing my oncologist on January 8th for a scheduled catch-up, so will add this to my list for discussion! Cycle 2 starts on January 12th.
Apart from that, no adverse effects so far, still eating, drinking and walking normally... my hair has started shedding, but not in huge amounts. On the plus side, the pain in my right buttock disappeared a few days after the first treatment and I can now feel the pressure in my perineum is visibly less. I have been experiencing on-going mucus from the fistula, which is manageable.
Hope everyone is doing well and that you enjoyed the holidays.
Kathy
Hello KatB5
Gosh, I was warned about the chemo leaking but it never happened to me but it sounds as though they were keeping a really close eye on you, on the chemo unit they always do in case of mishaps like this. I am pleased to hear the rest of the infusion went uneventfully. I also had/still have your problem with cannulas. In the chemo unit I attended they had long yellow buckets (I think they requisitioned sharp containers) which they filled with hot water and kept everyone's arm in for ten minutes. It mostly made the cannula insertion not too bad, although when one nurse struggled a bit I passed out and they cancelled the chemo session (I booked another one).
When I went in for blood tests the lovely phlebotomist was amazing and managed the cannula painlessly every single time and never left a bruise. She was Turkish, a qualified nurse (couldn't yet practise in the UK) and guess where she worked in Turkey - the premature baby unit, where she had to take blood samples from tiny babies all the time!
My hair really started falling out in clumps after the third session, we had taken off for a holiday during the two week break. I bit the bullet and had all my hair cut to about 1/2cm, my daughter bought me soft Kohl pencils to give me some definition round my eyes, and I was fine apart from my nose running all the time, nose hair serves a purpose!
I am so pleased to hear that you are tolerating the Carboplatin/Paclitaxol well. I think it is one of the better-tolerated chemo drugs and I hope it continues that way for you. And the bonus of less pain too.
And great that you managed to raise your magnesium levels yourself, but if it becomes difficult, they will just top you up with sachets to take at home.
Please let us know how your meeting with the oncologist goes, wishing you the best of luck.
Irene xx
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