I just can’t catch a break!

What a nightmare for you. I am just so very sorry that you are going through so many obstacles and you must be beside yourself. Starting treatment is challenging enough even when it goes to plan and I really feel for you. 

I hope that they get the machines sorted ASAP. I’m sure your Aaaaargh doesn’t come close to expressing how you are feeling right now.

Big hug to you xx

As you say, Aaaaaargh!!

I feel your frustration. My appointments were at roughly the same time each morning (which seems to be unusual) and one Friday morning near the end I arrived at 9.30am to be told the machine had broken down. I could have wept; I was just counting the days and I was really weary by then. They did get it fixed but I had to sit around all day waiting as it was too far to drive home and back.

I do hope it gets sorted soon, permanently, and you will glide smoothly through the rest of your sessions. I suppose they want it fixed too - must be a real pain for them.

Fingers crossed for no more disruptions! Good luck.

xx

Hi Sarah     ( Crystaltipps73f2a8 )

Can’t blame you for ranting how frustrating must that be and what a start! but I am glad you managed to make it to your show though that must have been a welcomed distraction.

I can sympathise with lying there while the machine is rebooted as I had a similar experience of lying on the table with just the paper cover on while the tech came in to reboot everything and I still feel the discomfort from holding the full bladder for an extra hour while it was all sorted.

They also moved all the appointments at the hospital from the Friday to the Sunday while they upgraded all the machines in all the radiotherapy suites just as I was finishing treatment so I missed that one but shows it’s not the first time and I’m sure so long as they get all the sessions in your treatment will be complete. So I hope they get the fix in and you don’t have any more issues it’s as stressful enough time as it is without having to worry about the equipment!

Good luck with the rest of it

Monty xx

Totally feel your pain and frustration and this is definitely a good place to vent.

My second session was cancelled due to breakdown and then we had some further problems which set me back on treatment.

It adds another layer of anxiety and frustration that you can do without. I never thought about these machines breaking down and in my small hospital they only had one.

After the third time my partner was so angry and I was so relaxed, total role reversal for us. I told him we can't change it, so just have to believe the problem will get fixed and treatment will continue.....it did with only one further problem.

I am keeping my fingers crossed for the rest of your treatment and hoping you can get to enjoy a little free time in-between.

Ally xx

Hello Crystaltipps73f2a8 

How upsetting - the very last thing you need right at the beginning of treatment.  I am keeping everything crossed that a permanent repair has taken place and you don't have any more treatment cancellations.  And I am sorry, too that your first weekend off is now spoiled, I do hope that you don't have far to travel to the hospital.

Big hug 

Irene xx

Thanks everyone. It’s so helpful to hear from people who completely understand. 

Luckily yesterday they eventually managed to find a treatment slot in the evening. Not ideal with trying to manage food and chemo tablets, but at least it was done. One of the two machines is still broken today but they have found a solution for me that is actually a bonus as they have asked me to go to a centre that’s much closer to home. They have said I can’t have all my treatments there because of lack of support there but if I can manage to get some done more locally that will be good for me as I can walk to it! 

Feeling a bit low today - my back is really hurting, which I think is from spending 5 hours on Monday sitting waiting in chemo and then spending a similar time on Tuesday sitting on an uncomfortable studio chair watching filming of Masked Singer (which was brilliant). Hopefully they will be able to give me something stronger than paracetamol today that will help sort it quickly and enable me to get some sleep. 

So glad to hear that you managed to have your treatment yesterday even though very late in the day, and that a temporary solution has been found. Great that it’s closer to home and you definitely deserve a positive break.

I hope your back eases up and that you can source some help for the pain. Not being able to sleep is grim and has such an impact on everything. 

Really hope that everything goes more smoothly from now on. xx