Road Runner meets Daffy Duck meets The Walking Dead..

Hi,

Great to be finished and still have your sense of humour, I can definitely relate to that Road Runner!

Yes, things will be harsh for a bit longer, but at least you are aware of that, and are not left thinking 'Will this ever end?'

Remember to treat yourself kindly, pamper the bits that need pampering and just keep putting one foot in front of the other. You will be able to reclaim your old self soon. Spring is on the way and so is your vitality!

x

Hi LCraig,

Great that you have finished treatment but you are most definitely still in the hardest part.

Your characters completely sum it up and it’s hard thinking what on earth has happened to my life and my pre AC self. The fact that you have managed to retain some sense of humour is a credit to you and shows you retain some strength when everything around you has become slightly surreal.

Wishing you well for the days ahead and hope the proverbial corner is turned very soon xx

Hi LCraig 

Well done on getting through treatment. Love the road runner analogy. Rest and recover and you will be back partying soon. Xx

Hi LCraig

Your post really made me chuckle thanks..

I really understood everything you described and some but I have to say humour has been one of the things that has really got me through some of the trickier parts along with the morphine haha.

im 3 months post treatment now and agree there’s no real timetable either so you just have to take each day.

keep healing.

best wishes 

Nell

Hi LCraig ,

So good to hear your treatment ordeal is done!! I remember the brain fog well along with the Daffy Duck although thankfully I didn’t have a dose of the Road Runner! Hopefully after the next couple of weeks you’ll turn a corner & your recovery can begin in ernest. The old (younger) you will return it just takes a little time. Rest as much as you possibly can now, try & preserve the little energy you do have & be kind to yourself. 

Sending healing thoughts your way. 

Nicola 

Thank you Nicola I really appreciate your insight and you sharing your experience.

This really is hard work and I genuinely believe that the only people able to truly understand are people like you who have lived experience.

This is the lowest I have felt physically and mentally since I started to experience the problems that after a really long haul led to diagnosis and treatment.

I hate feeling like this and how vulnerable I think I  am right now. I did not expect to feel like this and that somehow makes it feel worse.

I believe i will get better but that can’t come soon enough.

x

Hello LCraig

You really are at the very sharp end of treatment right now, and as you are finding out, it can be really painful, overwhelming and depressing and sometimes we think is there ever going to be a normal for me again.

The good news?  You are finished treatment, and you have done so well!  No more daily trips, horse pills, putting a brave face on for the staff, you just need to be really kind to yourself and rest, rest and more rest.  Your body takes a huge mount of energy to repair itself, and you need to let it do that.  And a caution - now that you are no longer having treatment the opioid meds can cause constipation and you truly don't want that.  Laxido is a gentle stool softener which helps avoid that. 

We were talking about it on here the other day and one day (and I hope it is soon for you) you will look back and think, did I really go through that?  The mind has a wonderful way of compartmentalising traumatic and unpleasant times and it is only when I come on here that it brings it all back.

And your description made me laugh out loud (sorry, I know it isn't funny for you) and I am delighted to see that you haven't lost your sense of humour. 

It might take a week or so but the light at the end of the tunnel will get brighter.

Gently healing hug

Irene xx 

We do understand absolutely, in a way it seems like a lifetime ago but on the other hand when I read someone’s account, such as yours & the way you’re feeling right now it seems like just yesterday.

I really do feel for you. I can also assure you that brighter days are on the horizon. I’m praying for a swift recovery for you.

This journey is as tough psychologically as it is physically & until you’ve been through it it’s something you really can’t understand fully. The whole experience can break the strongest of us but you will come back from this.

Don't hesitate to pop on here if you need a chat with someone that really does understand what you’re going through.

Nicola 

Hi LCraig - Remember this floating / vague and weird feeling so well, it felt like the side effects would never end, but they get better and do fade away. As others have said rest up and give yourself a break, you are on medication that will help you recover and the treatment will help to prolong life.

I am six months post treatment ending - saw Consultant yesterday for second MRI scan results and not clear apparently - but I feel well, can walk for miles as opposed to one step six months ago!!! You will soon be counting your steps rather than road running and having pain relief just to function.  

It really helps having support and I have been fortunate enough to have been referred to the Harmony Therapy Charity who have been amazing - find or ask for someone near you and you will have a therapist support which is invaluable.

Good luck - x 

Hi Angie SE , I’m so sorry your MRI results didn’t bring you the news that you wished for but I’m so pleased you’re feeling so well. It’s also good news that you’ve managed to gain access to some therapy, as I’ve said many times before this can be as much of a psychological battle as a physical one. Has your consultant given you a plan moving forward concerning your present situation? 

Remember we’re here to support you however we can. 

Nicola