Scan Results

Hello Bungle1

I am so very sorry that you didn't get the news that you hoped for; I can completely understand your reaction.  I am relieved that your team are on the ball and exploring every option for you and checking everything out in fine detail but that uncertainty that you are going through right now puts your life on hold, I can understand that.

I am keeping everything crossed that what is showing up is just inflammation and scar tissue.  And we are here to support you, if you need, whilest you have all these checks (and afterwards too).

Big hug, Bungle

Irene xx

Hi lovely - we are at the same stages in our treatment - I had my 3 month review on Monday and like you tumour still there. It’s shrank but needs to do the same again in the next 3 months. I so wanted to hear ‘it’s nearly gone’ as I’m sure you did. Everyone around me is saying ‘well it’s not bad news’ but unless you are walking this path you really don’t know how devastating this news is.
My oncologist wouldn’t speak to me about surgery - said I was getting ahead of myself - but I’m a single mum with many pets and I’m trying to think ahead. If I need surgery what’s recovery time etc. to make matters worse the tumour is super painful these last few days. 

My friend did say something which helped - ‘they aren’t urgently looking at solutions’ meaning they are happy that the current course of treatment is the way forward. Then she said ‘stoma and live vs not’ I hate that these are our choices  

The fact that they have booked a PET scan for you means they will get a clear indication if it’s scar tissue. I so hope that’s what’s going on. In the meantime please try to voice what you’re feeling. Either here or with friends. Disassociation only works for a little while. The amount of times I cry at the most innocuous things. I hope you get your scan and results quickly  

Sending you love and strength x

Hi Nikki65 

Thank you. I had told myself not to expect the all clear but secretly hoped I would. Hopefully the pet scan won't be to long and that will be a definite result one way or the other. Xx

Hi AW3 

Thank you. Fingers crossed I get the same as you. Xx

Thank you Irene75359, you are right about how you feel everything is on hold, that is how I feel but then i think stop being stupid and get on with things . Xx

Hi Neuro72

Thank you. I'm sorry you are having pain, have you spoken to your medical team. I think family and friends mean well with what they say but unless they've been there they can't really get it. I cried at the beginning of this journey and during treatment but I have no tears left now, even when I feel I want to cry nothing happens . Xx

My oncologist has told me to increase morphine - I was slowly reducing it but he said to up it again. Just waiting on the script from my GP. 

i cry when I’m alone. Usually in bed. When you don’t have to be ‘coping so well’. I hope you have things/ people which you give you comfort through this. I joked with my nurse on Monday I was resorting to spells   xx

Hope your script comes through soon. The gym is my happy place went and chucked some weights around when I got back yesterday. Xx

Yes! The gym is so good-  a chance to feel normal for an hour. Glad you have an outlet x

Hi Neuro72,

Just to say that I’m so sorry that you too didn’t get the much hoped for outcomes from your scan. I can only imagine how much this has affected you particularly with a resurgence of pain. 
It sounds like you are putting on a very brave face outwardly but can understand the distress, worry and quiet tears.

 I hope that you got your prescription for pain and that you have friends to support although completely get that they will always focus on the positive.

We are all here for you any time you need to vent. I hope you get some answers for your pain soon.

Big hug to you x