Is anyone being treated for Ain3? Want a buddy?

Hi  

Firstly welcome to the Macmillan online community although I’m sorry to hear what you’re going through just now. 

I noticed you’ve not had a response so I thought I’d jump on to at least offer acknowledgment of your post. I don’t personally have any experience of the kind of treatment you’re having & can’t recall anyone posting about it during my time here although that’s not to say they’re not out there as not everyone that joins the community feels the need to post. Hopefully someone that’s been in a similar situation will see your post & reply. 

I’m always pleased to hear of people taking part in studies & clinical trials etc., as this is obviously key to advances in treatment, I jumped at the chance to be part of the PLATO trial for my treatment for my diagnosis of anal cancer back in 2018. 

Wishing you all the very best of luck with your continued treatment.

Nicola 

Thank you for replying!!  I'm ok in real life, lovely husband and friends but there's a limit to what they can really understand and how much airtime I want to give this out of limited downtime round work / small kids.... anyway - thank you so much again, really glad to see you doing so well!  If anyone comes along in the AIN boat that would be a bonus but sounds unlikely :)

Take care

MrsC

x

Ah you’re welcome  , as I mentioned before I don’t have any experience of the treatment you’re having but we’ve definitely had members here with AIN in the not so distant past, so if you pop ‘AIN’ in the search bar at the top of the group page it should bring any posts up that have mentioned it. I hope that helps. It’s good to hear that you have a good support network around you but I know exactly what you mean about giving it too much airtime, originally I told very few people about my diagnosis, I deal with things like this better privately but also I didn’t want my whole life to be about cancer! 

Nicola 

Hiya I’m on my 3rd year of treatment for AIN would be happy to chat

thank you so much!  Will add you as a friend, really appreciate this

I am here and a fellow sufferer. Currently AIN 3 and having surgery every 3 months. Would be glad to chat. So nice to know i am not alone x

Hello! Sent you a message love. Xx

Hello, I also have internal AIN3 and so far don’t have any confidence that my surgeon knows anything about it so would really love to share some knowledge!

I had some bleeding and the colonoscopy found a depressed lesion (unusual in itself) that they thought was a low rectal cancer.  Scans and a biopsy under anaesthetic revealed “only”  AIN3, so anal rather than rectal. It’s 6 months since that op, partly as I’ve moved area and my first appt in Feb was cancelled. 

I have my first appointment with the new hospital tonight and have no idea what they will do.  I’ve read that it should be checked every 3m, but is it just a case of “wait and see”?  I’ve not heard of Aldara - will Google that now!!  I’ve also read that depressed lesions are more likely to be cancerous, but they’re only discussed in relation to rectal cancer rather than anal so it’s frustrating that there isn’t much info out there.

Would really love to connect with anyone who’s been in a similar position!

Hi Kate - sorry you’re in this boat too but welcome! The guidance I have seen is every 3-6 months so I totally get the anxiety but you’re still within that. Where are you being treated and how are you feeling today? Xxx

Hiya, thanks for getting in touch! I’ve just moved to Leeds, so at St James Hospital.  Previously I was at Stoke Mandeville and they were going to refer me to Oxford, but they reckon Leeds is also a more specialist centre.

I’ve kind of been ignoring it, but nervous about the appt today.  Am still bleeding every few weeks so it’s certainly not going away!

Whats the Aldara treatment? Is it working? How are you doing?