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With great sadness, I want to share the death of my husband with this community. He was diagnosed in August 2022 with Myelodysplastic Syndrome. For him, there were no treatment options or cure. He managed alright despite this horrible disease and prognosis...
Hello I am new on here , my partner has been diagnosed with aml
Hi My 17 year old daughter was diagnosed with Acute Myeloid Leukaemia. Chemotherapy just isn't working for her so the only option left is to try a stem cell transplant. She is going into hospital early June. However, I also foster babies. I am really...
Hi everyone. So I first hade AML in 2013, I had 3 rounds of chemo in the trial AML17. I stayed in remission until June 2022. In June 2022 I found a lump in my breast and I instantly thought if it was cancer then it would be breast cancer. It turns out...
Hi everyone, my dad is currently in hospital and waiting discharge following his first cycle of non-intensive chemo (Azacitidine & Venetoclax combo). He told me on the phone that the haematologists are waiting for one of his blood levels to drop below...
Hello everyone. I have just found this forum, I was diagnosed with AML on the 25th March and it has been such a rollercoaster. I haven't really had time to process it fully I was admitted the day after began my first chemo on the 29th March and finished...
Hi All My dad, who is 72, has just been diagnosed with AML 3 days ago. He went to the doctors a couple of weeks ago and was told it was flu and then got progressively worse to the point where he couldn't stand up last weekend and was being sick even...
Hi My name is Emma-Jane and I was diagnosed with AML last Thursday. To say my world has turned upside down is an understatement...no symptoms just routine blood tests and from then it has been a total nightmare.I am 56 and still cannot process the information...
In may I was diagnosed with APL and now in August I’m in remission. How I got here I don’t know, because I feel like it was just a whirlwind from noticing bruises, blood tests, then referred too hospital and admitted on same day; I was kept on this...
Hello My company gives its employees us as a perk an annual donation in our name. I am trying to nominate the MacMillan Support center, but it’s asking for a contact within the organization. can someone help me here?
