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Hello Everyone, I am here in Michigan, United States and my girlfriend’s dad was recently diagnosed with Acute Myeloid Leukemia. Her dad is 64 years old and is considered to be healthy otherwise, so he was able to be on an aggressive form of 7 3 chemo...
hi all, im new on here I,m now 59 years old and last june was diagnosed with aml ( flt 3 + npm1 mutation ) with 9-12 weeks to live. I intially started 2 cycles of chemotherapy ( Daunorubicin + Cytarabine ) + midostaurin which put me in remission....
Hi all - have brought my dad home and we're now on palliative care. Macmillan haven't been in touch yet and the hospital have just said it'll be tomorrow now. I can only give him Metoclopramide, paracetamol and his penicillin, but he was very sick yesterday...
Good morning. My wife, Karen is about to end her courses of Midostaurin having been in remission for almost 12 months. We were originally told that Karen would have 2 years of Midostaurin before being taken off it. The consultant had informed us that...
Hi, my wife has AML and been through chemo and transplant but mutations still present. Considering this treatment in Florida. But expensive and limited evidence of success. Interested if anybody knows anything about it.
Hi. Just posting here to get started. My 83 year old mother was diagnosed with AML about 7 weeks ago following a routine blood test. It was very unexpected and things have moved very quickly since then. Her doctor is very keen for her to start chemo...
My daughter just got discharged from hospital.. Hopefully last ever time as an inpatient.... Was in remission after round 2. Bone Marrow Biopsy again next month to make certain they've got it all - with some blood tests in between to ensure blood...
I have been diagnosed with the above . Apparently it is very rare and my prognosis is terminal . My consultant showed me the very little information she had and it seems 7 to 12 months . I’m devastated. I have started chemo for 18 weeks which I’m finding...
Hi all, not really sure what to type here but just looking for some help online. I’m 25 and found out a week ago that I have leukaemia. I’m really scared and worried about what is going to happen in the next few months. Just wondered if anyone could...
Hello, Firstly hello to all, sending best wishes. Posting about a dear family member, of course understand how everyone is different but wondered if anyone has any experience in this situation. My wonderful father in law was diagnosed with AML a...
