Recently diagnosed

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Hello everyone. I have just found this forum, I was diagnosed with AML on the 25th March and it has been such a rollercoaster. I haven't really had time to process it fully I was admitted the day after began my first chemo on the 29th March and finished yesterday. It is the isolation that Iam really struggling with and I cry like a baby whenever my visitors leave.

  • Hi   and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.

    I don’t have Acute Myeloid Leukaemia (AML) but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkins Lymphoma reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I do appreciate the journey rather well.

    I have had 2 Allo (donor) Stem Cell Transplants so understand the challenges of long periods of being in hospital.

    Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘AML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.

    You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

    You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups most are online at the moment….. the one I attend does have a person with AML in it so worth checking.

    Always around to help more or just to chat

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi Caroline58,

    I was in your position a year ago and have just finished Stem Cell Transplant.

    This is a normal reaction felling isolated and emotional, I used to talk to the other guys in the ward this helped me when I did not have visitors. We used to get the Macmillian volunteers who came round who have been through a similar experience and don’t forget the macmillian nurses who can help and provide support.

    I have also found this site great for advise and information from people who are going through or been through, just ask and sure you will get a reply.

    If you have any questions I can answer with the experience I have been though.

    Hope you feel better soon and treatment goes well.

    Take care

    Garry (Gman)