New to the group, AML with KMT2A diagnosed in July

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Hello,

This is my first time posting and indeed joining any forum as I suppose up until now things have been a bit of a whirlwind. 

I was diagnosed with AML with KMT2A mutation in July. I spent 5 weeks in hospital including most of the first round of chemotherapy. I got very ill at one stage and had to go to ITU for a week. At the end of round one I was in flow remission. 

Tonight, I finish round 2 at home and I'm straight into round 3 tomorrow including my first IT chemo which I'm very nervous about!

A stem cell transplant is on the cards, which also I found very daunting. 

I hope you are all well, and fighting this awful disease hard. My best wishes go to each and every one of us. 

  • Firstly, I am very sorry to hear of your sad situation.

    I am pleased to hear your are doing well with the treatment.

    I was diagnosed with AML in April 2025 and am presently in remission. I had the defective gene NPM1.

    The treatment is tough but I also found round 1 was the toughest. I hooe that is the case for you and you are over the worst of the treatmebt. I did not have SCT so not sure what that is like.

    I really wish you all the best and if you want to ask me anything please feel free.

    Mark