Hello,
This is my first time posting and indeed joining any forum as I suppose up until now things have been a bit of a whirlwind.
I was diagnosed with AML with KMT2A mutation in July. I spent 5 weeks in hospital including most of the first round of chemotherapy. I got very ill at one stage and had to go to ITU for a week. At the end of round one I was in flow remission.
Tonight, I finish round 2 at home and I'm straight into round 3 tomorrow including my first IT chemo which I'm very nervous about!
A stem cell transplant is on the cards, which also I found very daunting.
I hope you are all well, and fighting this awful disease hard. My best wishes go to each and every one of us.
Firstly, I am very sorry to hear of your sad situation.
I am pleased to hear your are doing well with the treatment.
I was diagnosed with AML in April 2025 and am presently in remission. I had the defective gene NPM1.
The treatment is tough but I also found round 1 was the toughest. I hooe that is the case for you and you are over the worst of the treatmebt. I did not have SCT so not sure what that is like.
I really wish you all the best and if you want to ask me anything please feel free.
Mark
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007