Hi all, just joined group and hoping to get valuable info and help from it, and also hopefully contribute. Diagnosed Aml in June 23, since had lots of chemo then sct in May 24. Just had first Dli and so far things not too bad. Be greatful for input about post sct and dli's and especially maintenance therapy (sorefanib). Thanks for looking.
Hi Alron and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
I also know the Allo (donor) SCT journey rather well as I have actually had 2 Allo SCTs the first in June 2014 with my second in Oct 2015……
My story is rather complicated but you can See my story here in my profile where you will see I had a bumpy ride after my second Allo……….. but I am over 9 years out from my last treatment, I turn 70 this year and I doing great.
You may find some of our ongoing threads helpful….
Life after a SCT - A Survivor's Guide where we have tried to collect or post treatment experiences.
Late effects and problems where we look at issues further down the line post SCT.
I see you have joined the Stem Cell Transplant group….. but most people move on with life after completing SCT so the group activity can be on and off.
We all do what needs to be done 
