AML 18 - please is anyone doing this trial?

FormerMember
FormerMember
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Hi - I'm Katharine.  Please is anyone enlisted on the AML18 trial for elderly patients?  My husband (77) has very recently been diagnosed with AML and been treated with hydroxycarbamide.  The consultant mentioned the AML18 trial and I wondered if anyone has experience of this.  If so, please how bad are the side-effects?  All info is useful to us. With many thanks and best wishes to everyone else in the group.

Katharine    

  • Hi and welcome across to this corner of the community. I am Mike  and I help out around our blood cancer groups.

    Sorry to hear about your husbands AML diagnosis. There have been a few who have been on AML18 so let’s see if they are still active on the site.

    You can put AML18 into the site search tool Mag near the top (choose the Anywhere tab) and look at all the old post and as always hit reply and see if you can connect.

    It would also be helpful to reply with what hospital he is being treated at as the more info the better.

    Always around to help as best as I can.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember

    Very many thanks for help.  We're in Bath, Somerset.  Very good consultant. All best, K

  • Hi Katharine, I had the AML18 trial in  MAY 2018 aged 61, I was very poorly at the time but coped quite well with few side effects. It consisted of 10 days of chemo, then a few weeks later 8 days, followed by 5 days again a few weeks later. It got me into remission but unfortunately I relapsed the following February. I went on to have a bone marrow transplant just coming up to two years ago. Hope all goes well for your dad x

  • FormerMember
    FormerMember in reply to parkrun mark

    Hi Parkrun Mark - Thanks very much for your info.  It's extremely useful.  Thrilled to hear that you got a bone marrow transplant.  All best wishes, Katharine