Hi Lena and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about you are looking at going into Bone Marrow Transplant
First, I am 99% sure that when you were told you will need a BMT they actually were referring to a Stem Cell Transplant (SCT).
They are the same thing but the process has come so far that it’s is very unusual for an ‘actual’ BMTs to be done.....more likely a SCT.
I was diagnosed back in 1999 with a rare type of Skin Non Hodgkin’s Lymphoma and as part of my journey I have had two Allo (donor) SCTs (June 2014 then Oct 2015)........ but I was told I was having a BMT...... it’s all confusing, consults do tend to use the old term.
In terms of the risks of having a SCT, there is indeed great risks but it’s all about risk and results. Back in 2013 I was given a few years and the final treatment available was SCT...... yes it was very hard but I have been in remission since Sep 2016... which is amazing as back on 1999 I was told I would never be in remission and I am living a full and happy life.
We have a dedicated Stem cell transplant group, this will be a good place to connect with patients and families navigating the same type of SCT treatment journey.
To join the group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones). You can also join in with existing ‘Discussions’ by clicking on 'reply'.
I will keep an eye open for you in the group..... hit my name to see my long story ((hugs))
