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HI My son now(62) was diagnosed with AML DECEMBER 25. He spent the first 6 months (with the occasional home visit) in City hospital Nottingham. He was discharged July with weekly then monthly visits to the clinic. He is now back in hospital - his...
Hi all I was diagnosed with AML in February 2025, since then I’ve been on chemo ( 17 cycles so far of venetoclax and azaciidine ), I also had a spell in ICU with sepsis following an infection early on in my treatment. 26 years ago I has a cystectomy...
I’m really struggling here today my mum is 70 and was diagnosed in august this year, we are extremely close and I’m only daughter I don’t know what to do to help her anymore
Any advice or help that I can offer my son son starting intensive chemo next week? 4 rounds. Any advice much appreciated ️
On 28th September my daughter was diagnosed with leukaemia. It’s her 25th birthday today and I’m trying to stay strong.
Hello all, I hope everyone is having a good day. I have noticed every time I have oxygen therapy either via mask or nasal cannula afterwards I get a really tickly and irritable mouth and throat. This causes me to cough a lot. Has anyone had this and...
Hello, This is my first time posting and indeed joining any forum as I suppose up until now things have been a bit of a whirlwind. I was diagnosed with AML with KMT2A mutation in July. I spent 5 weeks in hospital including most of the first round...
My Dad (78y) has CMML which has transformed into AML. He had a really good 9 months on Gilteritanib with few side effects and great control of his leukaemia. This stopped working fully a few months ago and he is now on a triple treatment which includes...
'Hi I'm new to this group, my mum was diagnosed with AML on the 12th August, I'm absolutely devastated, we are very close, she has started chemotherapy and is really feeling knocked out by it all...is there anything I can do to help her? Are there any...
Hi all, just joined group and hoping to get valuable info and help from it, and also hopefully contribute. Diagnosed Aml in June 23, since had lots of chemo then sct in May 24. Just had first Dli and so far things not too bad. Be greatful for input about...
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