Hello to fellow sufferers of ALL. I have the Philadelphia Chromosome positive element
Hi feline-fan
Welcome to the ALL corner of the community although of course sorry on having to come and find us!
I had ALL and was diagnosed back in Sept 2012.. A lot of chemo and a stem cell transplant in 2013 later I have been told I am cured.. I have a couple of longer term side effects but nothing that they aren't working on at the hospital and certainly nothing that stops me having a completely normal life!
You can read about my journey by clicking on my name Paul1969
Where are you having your treatment and have the hospital given you an outline of what they are planning?
Paul
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
Hi Paul
Sorry for the delay in responding
I’m currently under Kings College Hospital in London.
Yes I definitely have a treatment plan. This coming Friday will be my 3rd session of chemotherapy under the maintenance phase. Previous to that I was on the consolidation phase and prior to that the induction phase. There is currently no talk of me needing or having an SCT / BMT.
I had another bone marrow aspirate last week, so should find out the results this week. Fingers crossed I’m still in remission
xxx
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