After spending a full, exhausting week trying to get travel insurance to visit family in America, and having had quotes of up to £3500 for a 10-day trip, I finally found reasonably priced insurance for under £1000 (multi trip) with InsuranceWith. They actually have on their list of blood disorders, the very rare condition Idiopathic Lymphocytopenia (or ICL) which meant I didn't have to explain it or spell it or wait while they spoke to a supervisor who had never heard of it either - and they also covered my Lymphoma.
Hi Cregaghgirl and I see it's your first post so welcome to the community......
I am Mike and I help out around our General Non Hodgkin's Lymphoma and T-cell lymphomas support groups.
I was looking through the unanswered posts and your post caught my eye....... as you are the first person I have seen that has Idiopathic CD4+ T-Cell lymphocytopenia (ICL) post on the community.
I have been on my journey with two different types of rare T-Cell NHLs for over 25 years.
Well done even getting a price for insurance...... I had to be 2 years out from my last treatment......
Have a great trip.
