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Hi everyone, my husband aged 56 has been recently diagnosed with Stage 1 Alk negative Anaplastic large cell lymphoma and has been told that he initially needs 6 rounds of BV CHP chemotherapy starting this Thursday. I was wondering if anyone else out there...
Just heard today my husband has been diagnosed with this very rare lymphoma any areas of the UK or worldwide who have experienced cases please please share, thank you x
Hello! I’m a 61 year old woman who had pink hair until chemo….just have a pink head now Diagnosed in March, I have just completed round 4 of CHOP therapy and finding it hard to find people with similar experience, mainly because it’s so rare. Because...
Good evening, My brother has recently been diagnosed with NK TCell Non Hodgkins Lymphoma Nasal Type. It has been very distressing for him and our family. The doctors have said it is very rare which has made us feel very anxious. He has stage 4 but is...
Hello I have just been diagnosed with a very rare cancer called follitropic mycosis fungoides I can't find much info on it and was told for a year it was just eczema by my Dr so ended up going private for biopsy I can find things about mycosis fungoides...
Hi all, Just wanted to say hello to the group (and thank you to those who have signposted me here). I am already blown away by the fact that there is support given so quickly. I have been diagnosed with Angioblastic T cell Lymphoma which symptoms...
Hi. I'm Mayzie. I was diagnosed with cutaneous T-cell lymphoma (CTCL) in August 2017. I am nearly 59 years old and still in complete denial of this rare disease. I am at stage 2b. I have had some tumours blasted with radiation - 1st one in March 2022...
Hello, I am new here. And it feels like I am walking through the most horrific nightmare as I write. Almost four months ago my partner suddenly fell very ill with very high fevers. After many weeks of life threatening critical illness, including severe...
Hi I'm Claire. New here I recently being diagnosed. Currently having e.c.p but have to go for a consultation about stem cell and bonemarrow transplant. I read the book they gave me and I'm so scared I just wondered if anyone has any help or have being...
