Planning to care for someone with terminal cancer

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Hi all, 

I'm very new to this forum. I am going to be caring for a relative in the coming weeks when they are discharged from hospital. They had a stroke and during this time in hospital they  were found to have cancer which has metastasised and spread. There's no treatment. Its in their lungs mostly and their stomach but has also spread to the brain. 

We live in a house with an upstairs. Walking and mobility is limited. I want to be as prepared as possible and give them the best care. So far, we are looking into hiring a stair lift. They will have their own room which is reasonably close to the bathroom and also have bathrooms upstairs and downstairs. We are going to be some furniture in storage to make sure hallways and rooms are easier to navigate. There's lots to plan yet as the multi agency team around them will likely also have input. 

Any advice or suggestions you all have for what else we can organise or be considering at this stage I would really appreciate it! 

  • Hello  

    A very warm welcome to the online Community although I am so sorry to find you joining us in these circumstances. The Community is divided into specific cancer and help groups and you may wish to join these 2 groups where you will find others in the same or similar circumstances - here's the links you need:

    Carers only forum 

    Supporting someone with incurable cancer forum 

    Once you click on the links I have provided and the page opens up - just click on "join" on the black banner at the bottom of the page. Once you have joined the groups you can introduce yourself - you can copy and paste or repost the post above. You can also ask any questions you have.

    Don't forget our support line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for you too.

    I hope this helps. If you do need any further help in navigation the community please do get back to me.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Tayclaire. 

    Id definitely consider a hospital bed and consider if there is space downstairs for it. 

    It may be helpful to know what the prognosis is. Not everyone want to know of course, but we ( my husband died at home) found an approx time scale helpful. In the end it was much shorter and we lived his last 2 months in our living room. In some ways its hard to prepare because you dont know whats coming, or how quickly. My husband went from driving, walking with a stick, eating to being virtually bed bound in the space of a couple of weeks. Its just such an unknown journey. The MDT and the district nurses should be able to help with whats needed immediately. 

    I wish you strength.