Hi,
I'm a little lost and heartbroken. My husband, 58 have hpv cancer 3yrs ago in his neck. We were told if you get cancer that this was the best one as the curable rate was so high. Six weeks of brutal treatment and he came through it.
A couple of months ago I noticed a changed in his voice and nagged him to go back. A large tumor was found on his lymph node, 4.5cm. They can't give him radio again and it's too large to operate. He's hopefully starting immunotherapy in 2-3 weeks with the aim to shrinking and contain....not cure.
They can't tell me how long but I looked online, stupidly, and maybe a Yr....if we're lucky a few more. We have four kids, 25, 22, 15 & 13. Right now we've told them that it is back and going to fight it. Can't face breaking their hearts just yet.
Im just so scared, lost, all of it. He has his own business which needs to go now to avoid stress. I jump from wanting to enjoy every moment to utter panic of doing it all on my own...without him. He is such a wonderful man, he lost both parents to cancer by 40 and has gone through so much.
I need to find a way to stop the tears around him but im drowning. I can't bear the thought of my kids having to go through this.
Sorry, I'm off loading on here
As an A&E man once said to my husband - it's just a number, nobody knows.
Didn’t want to read your message and not comment. I heard you. Make sure you give yourself the time to be sad, it’s really important. The more you hold it in the more it will spill everywhere. Breathe and just keep yourself a float. This is hard and you are doing the best you can. There is no perfect here. Lean anywhere you can, here, friends, or just moments where you breathe. I would consider talking to the children, but that is your call. You don’t have to do everything today. Take care
I know exactly how you feel but I would echo the response from Size4feet. I held it all in for nearly 2 years before visiting my nearest Maggie's centre where I cried and talked for an hour straight! I left feeling exhausted and emotionally spent, but much calmer and able to put things into perspective more. I'm still not sure how I'm going to go through life without my partner by my side, but I'm sure I'll find the strength to do it when needed. In terms of telling the children, that really is your decision to make. Our girls were both in their final year at Uni when we got the diagnosis. We decided to tell them and have been very open and honest with them ever since. It has helped that they are older but it does mean that they understand when things are a little tense at home or when we are both just sad. It also means that we have been able to pack in some amazing holidays and trips to ensure that we all have wonderful memories to carry us through. I lost my own dad very suddenly when I was young and I would have given anything to have had the time that we have had as a family to make these precious memories. It doesn't change our very sad situation, but it has allowed us the time to make the best of it. I wish you all the very best, and please look after yourself in all of this x
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