My mom has very recently been diagnosed with large cell neuroendocrine lung cancer which has spread to her spine. Had one round of chemo, reacted well but on day 14 pain unbearable by day 21 had a bad fall ended up in hospital with acute pneumonia. pleaded for us to get her out of hospital now caring for her 24/7 as a family. help is very slow, been refers to lots of different people but need support urgently.
pinning all our hopes on pallative consultant appointment today What should we ask?
I taken 2 weeks off work to care for her but it’s not sustainable. I love being able to be here for her but it’s draining and I have 3 children at home who miss me. I’m completely torn, what help can we get? Her meds make her very uneasy on her feet but she couldn’t go back to the pain she was in before. I’m worried she will fall again (she lives alone, we lost my dad to lung cancer 11 years ago) up untill last week my mom was fiercely independent.
Hi Buzz17
I'm sorry to read about your mom and I wondered how the appointment with the palliative consultant went?
I haven't been in your position, as I was the one with cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
Although my dad didn't have cancer, when he needed carers coming in after a spell in hospital, the hospital arranged for him to be assessed by Adult Social Services so that a care package was in place when he came out. I know that your mom is out of hospital, so it might not be the hospital's responsibility to arrange this, but perhaps you could ring Adult Social Services on Monday.
It might also be an idea to ring the Macmillan Support Line to ask if they have information on how you go about getting help for your mom. They're available every day from 9am to 8pm on 0808 808 0000.
You might also find this information from Macmillan on looking after someone with cancer useful to have a look through.
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
