I am new to all of this and I’m not even sure what answers I’m trying to look for. Maybe I just need to write? Who knows…
My beloved grandad was transferred to Hospice for end of life 5 days ago. He has Secondary liver cancer, mets to bone and lymph nodes. He has stopped eating, and is very tired. Completely lost his mobility and is hallucinating daily. He seems to enjoy the hallucinations so I don’t push back on them. Who am I to burst his bubble.
I’ve spoken with the consultant at the hospice and she has informed me that unfortunately it’s just a matter of time until he passes. I’m terrified. I’m constantly reading about end of life signs, what to do, how to help our loved ones but i’m just so scared. I am so lucky to be able to visit him every day, multiple times a day.
I haven’t really asked any questions, I guess I’m just looking for guidance
Hello...
Ah I'm so sorry to hear about your Grandad.
I understand all your worries and concerns as we were in your position 2 weeks ago. My lovely Dad was also in our local hospice for end of life care. We felt huge relief once he was in there as the care he (& us) received was amazing. He visibly relaxed once there and we think he felt safe. The staff are amazing and will let you know when your Grandad is coming to the end of his life. I had googled end of life/what to expect and was really anxious about being with my Dad, but at the same time I couldn't imagine not being with him. My nephew, who had a very close relationship with my Dad was also with him when he passed. He spent New year's eve with my Dad.....sort of sleeping in the chair next to him. I can't say watching your loved one pass away is pleasant, but I can't imagine not being there with my Dad and comforting him.
I've rambled on, sorry, and not really sure I've answered/helped you. But basically the Hospice staff will let you know when the time is near.....usually spending more time sleeping, not eating or drinking, not passing urine, changes to breathing pattern....and for my Dad he became unconscious.
We are 2 weeks on from losing my lovely Dad and we are all heartbroken.....I'm not sure how we learn to live without him, but for now are taking it a day(&sometimes an hour) at a time.
Sending you love and strength......and spend as much time as you can with your Grandad.....tell him how much you love him. Take care. Xx
Thank you so much for your reply. I am so very sorry for your loss. Sending my love and strength to you.
The hospice have been absolutely incredible already. I know exactly what you mean about feeling safe and settled. I am very fortunate to live only five minutes away from the hospice. It’s heart breaking seeing him deteriorate so rapidly. I too have googled end of life and read so many articles etc. but nothing can quite prepare you.
I’m my granddads first point of contact so I shall be notified of any changes, my heart drops every time the phone rings. He has raised me for 28 years and I have so many wonderful memories, so I am thankful for that.
Thank you so much again for replying. Your kind words have meant the world. Love and support to you and your family at this awful time.
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