Hi all,
My dear father was diagnosed with SCLC in 2018 and later NSCLC a couple of years later. The diagnosis was terminal and he had palliative chemo and radiotherapy, which helped. Now the consultant has told us his cancer is growing fast... He has had a recent PET scan as it is possible the cancer has spread...
My father has deteriorated over the past 6 month and more drastically over the past 3 months. He sleeps all day, wakes for a couple of hours and then goes back to bed, hardly eats and drinks and when he is awake, he doesn't talk much- just staring into space. He has lost all interest in anything.... just says he is very tired. it's sad to see him so distant, frail and weak.
He has fought so much. Is this the start of the end? In everyones experience, is this what happens at the end? What can we expect? (Please be honest here as we need to prepare ourselves) How can we best support my father? Also my mother, who is dealing with this on a day to day basis? I feel helpless...
Any offers of advice would be really welcome. Thank you for taking the time to read this post.
G xx
Hi G,
Am sorry to read of your situation, it is so traumatic to go through. I can only speak from experience of my Dad and pancreatic cancer but sadly the signs you mention did signal towards end of life approaching. The rapid deterioration is crushing to watch and my advice would be to start talking to your palliative care team about a care plan and what your Dad’s wishes are, we found things became unmanageable very quickly and it took some time to arrange what we needed. If you don’t already have a hospital bed / walking aids / toilet seat aids etc at home then it might be a good idea to request them.
I hope you are able to get all the support you need x
Hi GeorgieP,
Thank you so much for taking the time to read and reply to my post.
Sorry to hear of your dad. Thank you for being honest and giving me some useful information about things we might need or need to do. We have found it very overwhelming and have found it difficult knowing who to go to for help, but maybe if we speak with the nurses from the palliative team, they can help us put a plan in place?
Thank you once again, Georgie your reply has meant so much.
Best wishes,
G xx
Hi G,
Hopefully you have been able to speak with the palliative nurses now and they’ve been helpful? Sadly, we found the palliative team reluctant to visit urgently but I called MacMillan who helped me use the right language to get them to come out the very next morning (it was very much needed and they referred my Dad to a hospice the same day) so do keep this in mind if you feel you are not getting the right level of support. You can also request a same day visit from your Dad’s GP, MacMillan advised on this also, they still have overall responsibility so if you’re not getting the level of support needed then this is another avenue.
Best wishes to you and your family x
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