I just wanted to say hello as I've just joined these forums today. My (same sex) partner age 59 was diagnosed with metastatic pancreatic cancer early October. Its a massive thing to come to terms with. She had one doses of chemo in December, but reacted badly and ended up in hospital for over a week. But on discharge I think the chemo must have worked a little as she was in less pain for about 10 days, and her hair started to fall out. Over Christmas the pain returned, she's not been very comfortable past week. She has an appt with oncologist tomorrow so we've been holding out until then (as we thought it would be hard to get hold of any support over Christmas anyway, even if we knew who to ask ). If her bloods are OK she's hoping to start chemo again on Friday. She's feeling like she wants some counselling to help her process whats happening and how to talk to people about it. Like when friends want to visit, she sometimes tells them not to come if she's not feeling very well, as she's afraid they'll get fed up of her if she can't be cheerful. Its tough. Thanks for listening
Me again. Not a good day. Saw the oncologist this afternoon. He immediately commented that she was jaundiced (something I suspected in last couple days but didn't realise the implications). It means she can't cope with any more chemo. Which was the only thing there to give a better quality of life for longer and delay the end. But chemo would make her ill and her very sick liver can no longer cope with it. Feeling rather bleak
Hi Harmony60
Welcome to the online community. I'm very sorry to read of your partner's diagnosis and subsequent ill health. I'm also sorry that she is currently too poorly to have more treatment. It may be worth asking her GP to do a home visit to assess any pain she has and how she is managing. The GP surgery should be able to arrange for district nurse visits. These websites may also be of use to you
I think that if she is not up to friends visits then that is fine. They will understand that she is not well. If your partner feels that she would like counselling, her specialist nurse can arrange/refer her. Or Macmillan is offering counselling https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/bupa-counselling-and-emotional-well-being-support
The above is a link for more information. I hope the links are useful for how to go forward after the sad news you've been given. Best regards to you both.
A x
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