Struggling with processing

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Hey there, new to the forums but wanted some guidance and hope in an otherwise difficult time

Back at the end of the summer after some other health complications, our family had the news that my Mother had bowel cancer, which had spread to her lymph nodes, which we were told could not be cured with surgery. After processing this, it took a long time before she received her first oncology appointment but since then, it's just been a constant battle to get appointments sorted, to speak to people and have some treatment done. She then had a seizure which we discovered she had two small tumours on her brain with was treated with one round of radiotherapy, but there were constant pushbacks for getting her onto chemotherapy due to a lack of protein and potassium in her system.

Now after almost a week of pain, she's back in hospital but yesterday we were told her cancer has advanced and she's been placed on a palliative care ward. We don't know how long we have left with her but I'm finding it hard processing this, as I feel like she wasn't even given a chance to even try the chemo, and robbed of all the things she wanted to do, as well as all the plans we had together. It's just me and my dad who lives here and thankfully my brother and sister in law are staying with us for some time, but it's just hard to stay strong through all of this.

  • Hi  

    Welcome to the online community. I'm very sorry to read of your mum's diagnosis and that her cancer is advanced. It is a lot to take in and takes time to process. I have incurable cancer myself and my mother in law died very quickly from ovarian cancer. She was too ill to attend her own outpatient appointment and died later that week. It must be hard to deal with the fact that your mum wasn't able to try chemo. If however, there were deficiences in her blood, it may be that her body was not strong enough to be able to manage through chemo. I have had chemo myself and it is a harsh regime. I'm sorry for your future plans and dealing with shock and changes. I hope that you and your family can support each other at this time. I know you mention that it's hard to stay strong, please don't feel that you have to be strong. Talk with your family, talk to health professionals. The Macmillan helpline has excellent staff giving support and advice, this is the link to contact https://www.macmillan.org.uk/about-us/contact-us

    Best regards to yourself and your family.

    A x

  • Hi, thank you for the reply and I'm sorry to hear of your own diagnosis, as well as the passing of tour mother in law. I understand about the chemo treatment being harsh as she was informed of this and I've heard about how brutal the treatment is. However sadly, we lost her just yesterday morning. We really hoped for the best and looking back on the last year, there were some indicators from doctors which were never picked up to be a sign as when it was explained, it wasn't explained as anything indicating towards cancer so none of us then were to know. There is a lot of guilt being felt between me and my father about it all, and having to navigate through grief is hard. But thank you again for replying and your guidance.

  • I'm so, so sorry for your loss. 

    Just have no words but please don't feel guilty.....we are not medical professionals and we put our trust in those that are. We take what we are being told and don't know what questions to ask......

    Take care of your Dad&sending love. Xx

  • Hi  

    I'm so sorry to read that your mum has died. My condolences to yourself and your family. Please don't talk about guilt, it is very easy to look back with hindsight. My mother in law became unwell in the November. She had stomach pain, constipation and her legs became swollen near Christmas. Myself and my niece worked in the health profession but didn't appreciate the gravity of the situation. We were thinking it could be heart failure, which can be managed for a time. My mum in law got lost in the system after discharge from hospital. She had an appointment in the second week of January on the Monday. She was too unwell to attend so my husband and his dad attended to be told that it was likely to be ovarian cancer and she only had months left. She died on the Thursday.

    When I look back prior to my diagnosis there were signs which weren't picked up. Please don't take on any guilt, I'm sure your mum wouldn't want that. Can I direct you to this forum which may help you  Bereaved family and friends forum 

    Best regards to yourself and your family.

    A x

  • Yeah, I know. It's just awful because you're right, we do put trust in professionals and we weren't to know, but it just ruminates in the mind along with the rest of the grieving process. And thank you for the kind words.

  • Yeah, much like your mother in law, it was the little things that would go undetected - being told she had a thickening of the bowel, loss of appetite, 3 months of hives - the only way we even found out she had the cancer was through another health issue, but the oncology team couldn't provide chemotherapy until it cleared and by then, she was showing signs of the cancer starting to take hold. My mum did have her suspicions of the signs over the time too, but yeah. I guess it is part of the grieving process to have guilt, but you're right. My mother was always about moving forward and not dwelling on what's done. Thank you for the kind words and guidance though, it has helped.