I'm caring for my mum who has terminal liver cancer, she also is suffering really badly with encephalopathy I'm told from her organs suffering and shutting down. I knew it would be hard to care for mum as I had an idea of how bad it would be but it's soul destroying. She's lost weight, confused all time. She sees my dad and brother who have passed. And my dad she thinks still sleeps in the bed. She imagines people visiting that haven't. Gets confused how to work her phone, water dispenser, even doing her insulin. We see st lukes every two wks and that's it. I'm going to try and get hold of mcmillan but not sure how it all works. I'm trying my best but everyone keeps reminding me I can't do it all. Mum wants to stay with us til the end and I want that too. Is anyone else in a similar position. She told me tonight her days are numbered. Sometimes she looks at me so lost it breaks my heart. The only thing that has made this easier is the fact she has tried her best not to dwell. Still excited about my son and what he does. Life is so cruel.
