My mum incurable angiosarcoma

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My mum's cancer has come back after 15 months of being free. Just been told today that it's aggressive and incurable. My mum couldn't tolerate chemotherapy last time so had a operation in London at the Royal Marsden hospital in Chelsea an infusion this blasted it but now it's come back. It's all in her limb started lower but now has spread to upper. I have no siblings just me my mum and dad. My husband and his family are supportive but if I'm honest they don't really truly understand how I feel. I just feel like it's a nightmare that overwhelming feeling. I have to be strong for my mum, my mum is usually so positive and it really hurts me to see her so terrified as we're approaching the unknown. They are trying my mum on a different type of chemo we're just hoping and praying that the chemo doesn't cause her pain this time. The chemo will not cure it but it will keep it a bay. Hopefully start that soon they've marked it as urgent. It doesn't seem real at all I just put a brave face on and carry on at work but inside I'm a complete mess. My children have no idea their only young I don't want to burden them with this. Thank you to whoever is reading this. I just need comfort, I I'm honest I really don't know what I'm doing. X

  • Hello,

    I'm so sorry for what you are going through. I am going through something similar myself with my mum and I understand what you mean when you say it feels like a nightmare. It is such a difficult time.

    Try to remember to take care of yourself in whatever ways you can. 

    Sending love your way

    Sam

  • Hi  

    I'm sorry to read of your mum's situation. It must be hard for you to deal with and I think it would help for you to speak to someone. Is it possible for you to try to explain how you feel to your husband or a best friend. How would you feel about talking to your mum? I know you said you don't want to cause her more upset but if you are close, I think you would gain support from each other. I have incurable cancer and have had palliative chemo and radio and have an adult daughter. I wouldn't mind my daughter being honest with me. If this is not possible, consider speaking to your GP, who will be able to signpost you to local services. Alternatively, you could ring the Macmillan helpline, this is the link to contact https://www.macmillan.org.uk/about-us/contact-us

    Best wishes for your mum's treatment

    A x