Husband only has months left feel like im on a ticking clock were only in 30's and 40's

Hello Wolf79

I am so sorry that you and your husband are going through this. I can not imagine how tough it is for you both. You have been together for such a long time yet are still both young. 

I hope that you are getting the support you need from your husbands medical team and that you are being looked after as well? There is always someone on the Support Line that you can talk things through if it helps- anytime between 8am -8pm. They are lovely on there and are happy to just listen if that would help but would also be able to talk you through things and even be able to tell you what support may be available in your area. 

I hope also you have some family support around you? And that you are getting practical support when you both need it from the professionals. 

It must be hard to live in the moment whilst thinking about what may happen next. I suppose really the only thing is to take each day as it comes and to accept that some days may be better than others. 

I see that you have also joined the Carer's forum and that is also a safe place where you can post and share with others going through a similar difficult time.

I hope this helps a bit and we are here if there is anything you feel we can do to support you and your husband- just ask.

Jane

I feel the same and can’t quite believe it. Our whole world is consumed by the thought of death and how it will happen? Will my husband die slowly or  suddenly,  painfully? How do I watch that happening and stay brave for him? How do we get our heads round that and have any enjoyment of current life?