Metastasis pancreatic cancer

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We got the shocking news on Thursday that the 5 weeks of chemo for my stepdad has not worked and the cancer has now spread to his bones with shadows also on his lungs. We have been told that he has months but they cannot give an exact amount. He is in total shock as he says he feels fine which is throwing us all for a loop and we are finding it hard to accept the diagnosis. His next appointment if 4 weeks away and he is currently on no medication at all not even the medication he was on before his diagnosis for high blood pressure etc.   I guess my question is what happens next? It’s hard to conceive him getting ill when he’s saying he feels fine. Has anyone else had this experience?

  • Yes absolutely. My partner was diagnosed with terminal cancer in march, and apart from losing a massive amount of weight she said she felt absolutely fine, She had no pain, no discomfort. If he needs medication for other ongoing conditions, he should still be getting this. 

  • Thank you  . I am soo stressed as it’s a ticking timebomb. He has lost a lot of weight and looks grey in colour which we put down to the chemo. He still has an appetite albeit not a lot of food and has gone back to meeting his friends at the pub for a few beers. He came home today and said I’m going to fight this. I am all for a positive attitude but it feels like we are all being led into a false sense of security. Thanks for listening 

  • Hi, so sorry you're having to go through this. I can't say what will happen next - and maybe even your stepdad's doctors can't. The trouble is, everyone responds differently to their situation.

    Having been in a similar situation, I'd say: don't get hung up on prognosis - the timing probably isn't going to be what they say.

    Also, get as much information as you can, then stash it away until you need it. There should be plenty of support when he needs it, so it's worth finding out now who can help you with that when the time comes - community-based nursing, hospice support, welfare benefits. If you can, support your stepdad to pay attention to his will, advance care plan etc. - it's really scary to talk about, especially if he doesn't want to accept the diagnosis, but honestly it takes a weight off everyone's shoulders and will free you up to focus on feeling good now.

    When you feel ready, get support for yourself from your nearest Maggie's Centre or Macmillan. I've found they can help you talk about this terrible situation in an honest and supportive way.

    My partner was given 'three months or less' about three months ago. He was unwell at that stage, but he did rally for a couple of weeks, and then he's had small steps downhill, but still around at the moment. We've had to learn a lot, fast. Sending you and your  family very best wishes.

  • From diagnosis to now was 3 and a half months. Even reading the advice I was not prepared for this. It all happened so quickly in a short space of time. My dad passed at home peacefully. Between the district nurses and gp getting hospital bed at home it was 3 days. I am devastated as I did not think things would progress so quickly. I know gathering information is key but it does not prepare you for the devastation. Thank you for listening