Hello, I’m new to this group. It’s so lovely to be able to chat. My mother found a lump on her breast at the beginning of lockdown. I was caring for her and felt the lump. She went to the GP and was referred to the consultant. No test were done. She was examined and was told it was not cancer. She was told to go home and get on with it. Through the three years I saw the lump grow, but mum insist that it was ok because the consultant said it was nothingjust after Christmas this year her nipple disappeared and we made her go back to GP. It was to late scan showed Breast cancer, which had spread to her lymph nodes and a CT scan showed spread to her lungs. Back in March she was told she had 6 to 12 months. I have raised a concern with PALS and had a reply. They said there was no lump.
I am not the kind of person who likes conflict, but I am so disappointed with this consultant. I am unsure where to go with this as the outcome won’t change. I’m still loosing my mum. I know what’s ahead for her as I have just watched my in-laws die with cancer. The care they received from McMillan was incredible and neither of them suffered. I will continue to care for my mum in peace and harmony but can’t get rid of this disappointment in the consultant.
Hi Ulf
I am very sorry to hear your mum's diagnosis and the turmoil it must be causing for all of you. I can empathise with you in some way as I was told that my cancer was simple, contained and that I didn't fit the usual patient profile. I had a biopsy and ultrasound scan prior to a hysterectomy. By reading the patient pathways of others, this is minimal and often MRI or CT are done prior to surgery. If these had been done, my cancer would have been managed differently and I may not have become stage 4 and I may have had a cure. I have read others stories that have queries about the handing or mishandling of their care. It is a common theme and a sad fact that cancer is not an exact science and is different for everyone and that this is possibly why a cure is so elusive. That said, it is not an excuse for poor care and this is what you need to weigh up.
Your mum's story is heartbreaking. Is there no treatment to be offered to give her more time? As you have had no luck with PALS, the other option would be to make a request to see her medical notes, there is usually a small fee for this. I know it won't change anything but it may clarify matters for you. Would speaking to your mum's CNS be any help or would you like to speak to a nurse at Macmillan? This is the link to contact https://www.macmillan.org.uk/about-us/contact-us
I hope you can find some peace whatever you decide to do. Best wishes to you and your mum,
A x
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