A couple of weeks ago I took my 77 year old dad to hospital as he had been having trouble peeing and had blood. He was told he had bladder cancer which was a shock as he has been very active, and also had multiple Pe's in his lungs. He's had COPD long term but managed well for around independently managed an allotment with my mum, went for long walks etc. He was due to have surgery next week on the bladder so they could biopsy and agree treatment. He went back to hospital in an ambulance yesterday as he stopped being able to pee and lots of blood again. Today at his bedside we spoke with the nursing team about the plans for him to return home and die, he looks the shell of the person he was two weeks ago, they cannot do anything for him other than make him comfortable. I'm in such shock it's progressed so rapidly and agressively. He isn't able to eat and drink having trouble swallowing, incontinent now, bed bound, short of breath, it's a lot to take in. Him and mum want him to be at home so I'm hoping we can get things in place before it's to late. I'm finding myself lingering on thoughts of him being alone in the hospital room, scared in pain frightened, there has been no suggestion of these things happening but I can't shake these instusive thoughts, it's destressing and I don't know why they are happening :(
Hello Clair, I am going through similar situation, my husband has terminal lung and brain cancer. It's all happened, from working full time and having chemo on his days off to being bed-bound, doubly incontinent and unable to speak within 6 months. I have good support from friends who have experienced similar loss and I rely on them heavily. My advice is to take one day at a time, be nice to yourself, allow yourself to grieve and cry, and treasure the time you can spend with your dad. My husband cares about absolutely nothing in the world now, other than me, and you have to prioritise your dad. Dealing with the authorities is hard work, but persist, and make use of the agencies available (they know what to ask and who to ask). In the circumstances they can expedite any requests for help and equipment. My husband was at home but I couldn't cope, as I have no family support and I'm disabled myself, so he was placed in a nursing home. I visit every other day and I can spend quality time now, instead of the very challenging, distressing situation at home. The care staff are excellent and they look after me too. Literally one day at a time Clair, I wish you well. With Love, Woods.
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