End of life signs

  • 45 replies
  • 18 subscribers
  • 4611 views

Hi I know this is going to be a very hard subject for someone to speak about so I completely understand if no-one wants to answer it but I thought I would try my mum was diagnosed with pancreatic cancer in December not that long really feels like forever now but now I think she is nearing the end of her journey the signs are there I think. She is extremely weak in bed 24 hours can't walk to the toilet now doesn't eat at all she has a driver fitted for pain relief it's horrendous to see what cancer has done to her and I'm broken but I am doing my best my mum is at home at that is where she is staying I am doing all the care except obviously the driver which the district nurses do. I am making her end of life journey as peaceful and pain free as I can. I just really want to know if this is end of life signs as I don't know how long this will last Im looking for someone who has or is experiencing this to know if this the actual end of life as I don't really know what it looks like. Thank you 

  • I’m so sorry to hear about your mom. I’m happy you’re feeling less anxious and she was peaceful…I hope I feel the same too… it’s reassuring for me to hear. I’m sending you so much love xx

  • I am so sorry for your loss but I'm glad she is at peace as it was no life worth living in the end you can both be at peace now and knowing you did all you could so she didn't suffer in the end is all you can wish for and u done that u done the best by her time to process now and heal in time this will always be a awful memory for you but I hope you find some peace with init knowing you done all you could. Sending u and your family lots of love and support is always here should u need it when your ready as this is now a new unknown journey again xxx

  • Hi Darling34. Sounds like we are in a similar situation. We got told last week my mum only has months left. A question I forgot to ask the oncologist was the signs of end of life so i too have been searching for these answer. My mum like yours spends all day in bed dosed up on Morphine, she doesn't want to watch TV or listen to the radio much so she just lies there staring in to space and it makes me feel awful just watching her like that, I often wonder how long this can go on for. I know its heart-breaking and i can't imagine what's going through my mums head. She can't eat and is often sick and has little fluids, she can't do anything for herself anymore, my dad who is her carer and myself have no idea what to do and how to make anything better.  If you ever want to chat just message me. Keep strong xxx

  • May I ask you a question, I will totally understand if you do not wish to answer. Is fluid build up generally a sign that it is the end stages? 

  • Hi there, when I ask the nurses that come here she tells me this is the start of the end now but she tells me it's like asking how long a bit of string is everyones journey is different the signs are similar but everyone is different we are into week three with my mam now and it's horrible she will listen to music and put the TV on noy watch it but it's on she is completely bed ridden hasn't eaten in three weeks but I still don't feel we are there yet which hurts me so much because it's three weeks of hell she is going through unable to do nothing for her self she's so weak today we have had a bit of irritation and confusion is worse but we are still not at the end and she just wants it to be over it really is the worst thing to see in the world so I can't even imagine how she feels. Sending u lots of love 

  • Hi Crystalwitch, 

    I would like to know the answer to this too. Palliative care saw him Thursday and told him two weeks, he is supposed to have the fluid drained Wednesday, but he feels he won't make it. I'm worried sick as he can hardly breathe, I'm at a loss what to do to help him. I do believe it is the end of life stages. The fluid ascites builds and puts pressure on the vital organs. I'm no doctor though. 

  • Thank you so much, sending hugs xx

  • I believe it is too, there is so much conflicting info out there and I know everyone is different but it helps to know I think. sending you hugs x

  • Hi Darling32 and Irisrainbow, I totally sympathise here. My dad is the same as your mum, now doing nothing, not wanting food. He was fully active three weeks ago (aged 69) working as a carpenter, now lying on the bed staring into space or crying. He cannot breathe (its so horrible to witness) This is so hard, I can't bear this any longer, he can't, it's like torture for him and us watching him suffer. Nobody should suffer this way. I feel so sad, angry, frustrated, mad, helpless, the list goes on and on. I'm sending you both a hug x

  • Hey you are not alone today I feel exactly the same it's cruel it's such a cruel way to die there is no dignity just left waiting to die and to see it there are no words I feel like I'm going to have PTSD after this it's horrendous we allow people to die like this in this day and age it's no life for my mum it's cruel. There is nothing I can say to make u feel better here at all because it's just awful and I'm so sorry that you to are going through this hell I wish u weren't. Sending u lots of love