What to ask.

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My husband has advanced bowel cancer. It has spread and is incurable. He is very weak, has a ileostomy. Is on a range of drugs including for constant urine infections and is barely eating - 3/4 mouthfuls only each day. He is very confused and has no voice either. He’s 51.
chemo was due to start on feb 2nd but I don’t know if that is happening now - no one seems to be answering. 
palliative care nurse is coming today. What can I expect and what should I ask? I’m utterly freaked out about them coming - no idea why but want to be prepared. 

Thanks 

  • Hi, I don't know - we're not at that stage yet - but wanted to send you a virtual hug.

    The nurse is an experienced professional so maybe you could ask 'what should I be asking you?' Anyway, I hope it's a useful session for you.

  • My husband has advanced bowel cancer and is incurable. He is on palliative care and I thought that was it but his care has been going on for 9 months now. Life is different but not terrible. He didn't want to know how long he would have but asked just to know the next step. So we never talk about the end but just about what is going to happen next. 

    The palliative care team will work with you to enable you both to move forward in the way that you can cope with. Try not to just see the end but the journey, where things can be done to make each day a more comfortable one.

    They will also make sure you take care of yourself too .

  • Hi Mrs Px

    so sorry to hear about all you're going through. I'm supporting my husband (53) through his stage 4 brain tumour journey. Life's too cruel.

    There's no hard and fast rules about what to ask. Here's the link to some useful info from the website Supporting someone | Macmillan Cancer Support Can i suggest you write down all your questions/fears/concerns and keep the notes handy? I appreciate this may be too late for today's visit so I hope it went smoothly.

    These guys are the professionals and I'm sure they have come prepared to support you both.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    For now though I'm sending you a huge virtual hug. I hope today hasn't been too hard. Stay strong.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks for the advice and bit of hope xx

  • Thank you. It was a helpful session where the nurse went through lots of support and is organising other services for us. 
    next hurdle is the oncologist on Friday x