Six months to live, the sharp end...

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My beautiful, intelligent, loving wife of 50 years was told that she had six months to live, being diagnosed in August with aggressive brain tumour.

We moved back to England three years ago and haven't made any social contacts because of being locked down during Covid time... We have two daughters who live in Ireland and New Zealand. My old friends live in Kent, we live in Herefordshire.  We have one neighbour who is an 85 year old stroke victim who we had been supporting, my other neighbours are lovely but for past month have had flu and the Covid. I'm very isolated.

I was supporting her at home and struggling with the physical and emotional exhaustion I was feeling, when I managed to fall down the stairs and further damaged an already arthritic  knee leaving me in constant pain and feeling we were both now vulnerable. Just before Christmas I arranged for two weeks respite at a nursing home. During that time my wife's condition has deteriorated, she is much weaker and unable to move herself off her bed. The two weeks respite has now extended to five week, and during the past two visits she has been unable to speak to me.. 

My wife had been an international level athlete and since retirement has written four books. Now entering the sixth month of a six month death sentence she physically wrecked and unable to communicate...

I am very very sad.. 

  • I’m so sorry to hear this. I’m sure if you were interested there would be some face to face support groups if you looked into it, I know there is in my local area. It might help you feel less isolated and you would be with like minded people who are experiencing the same feelings as you. 

    I know you probably don’t want to think about the future atm but maybe if you were able to, booking a trip to see one of your daughters for the summer time might give you something to focus on and help lift your spirits a little bit 

  • Thank you.. haven't found such a group. It doesn't mean such a group doesn't exist, but not obvious to me. 

    I plan to go over to New Zealand for some months. 

  • Sending strength and hugs across to you and your family, it is a really difficult time for you all. How lovely that she has written 4 books something i would have loved to do.

    I am at the start of a month -to- a- year prognosis with my mother in law and the lung cancer and dementia are battling each other I believe, so i'm getting ready mentally to face a tough, sad few months ahead. 

  • I just read your story and wanted to check in to see how you are? I am so sorry to hear about your wife and I hope you have managed to find the support you need.

  • Thank you Ramen, my lovely life partner is still in the nursing home and has recently had a CHC review, I think that was what it was called.. I assume they want to take funding away... She had covid and has become weaker and less able to communicate. Last weekend she didn't seem to recognise our daughter who had flown over from Ireland, although she manages to tell me she loves me and thanked me for feeding her today.  I met with a counsellor from the hospice. But haven't got a support group, nobody seems to be managing this difficult situation. This GBM brain tumour is a sad ending to such a vibrant and creative life... there are plenty of sad stories on this site, I just have to "Keep buggering on" as Winston Churchill said.  thanks again Raman. 

  • If they take funding away from the care home everyone in your wife’s condition and anyone with cancer is entitled to care through continuing health care, which is funded via the NHS and is free. Yes you will have to do some of the care yourself but carers will visit four times a day and do the stuff that you can’t. They can get hospital bed at home to make it easier and it really is gold standard care! Ask them about continuing health care support. Make sure you get the care you deserve and need x