feeling completely alone

Hi candyfloss67 

Thank you for raising this here, I am sure many in a similar situation will relate.

It sounds very much like you need a carers assessment see Getting support as a carer and speak to your GP.

You sound very sensible and I can hear your love for your husband coming through in your words, hopefully you find the support you both need at this time.

<<hugs>>

Steve

Hi Candyfloss67,

I'm so heartbroken for you. My husband also had similar issue where cancer diagnosed last year with chemo and radio. All gone. Then a year later last week it's come back. Keep banging on about it to your GP. X

Hi

So sorry to read about your situation. My only advice is badger anyone who will listen, CNS, GP, social worker. It's hard but thats the only thing you can do. 

H x

Hi do you have a palliative  care nurse ?

My gran is on palliative care and we are practically begging for help. Fortunately I can wfh and I stay with her mid week mon-fri (I live an hour away) and then my mum does Saturday Sunday but she’s getting more poorly and this isn’t enough now. I’ve made the decision to move in with her properly now to care for her but I can’t do it by myself it’s so hard. 
We also have carers who are absolutely bloody useless! We got them because we needed support and they are a hinderance. We just have to keep going keep fighting for them make sure they aren’t forgotten. DN’s and doctor aren’t very forthcoming if you ring them with a specific problem they will offer any help if they can but they don’t support you in the home. You can ask for a care assessment to be done though continuing healthcare and you will get free care but the carers we have been given are awful so bad there is a language and cultural barrier and even simple tasks such as making a cup of tea are messed up. We have asked for them to be changed and it’s “in the process” i don’t know what your financial situation is but in our local area a 30 minute visit from a carer is £12 this is a route we are now looking into just a couple of days a week so we can have a break! You can also try the council and get an assessment done which you might have to contribute towards the cost but you can hand pick the care givers by getting a pre payment card. I hope you get sorted x