Primary bone dedifferentiated chondrosarcoma and secondary

HI Sarah

a warm welcome to the community. So sorry to hear about your husband. Life is too cruel.

My husband (then 50) was given a terminal diagnosis in Sept 2020 (stage 4 brain tumour) and nothing prepares you to hear that news. I appreciate that diagnosis is a different scenario but the emotions you go through aren't. It takes time to process all that you've been told and there are no hard and fast guidelines on how long that takes. Everyone is unique here and it takes as long as it takes.

This community is a safe and a supportive space so please reach out here anytime. You might also want to explore Carers only forum - Macmillan Online Community. Personally I've drawn a lot of support from both groups over the past two years. There's always someone around to listen, someone who gets it, someone to hold your hand and to offer that virtual huge when its needed. You're not alone.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

There's a lot of information available on the main website that you might wish to explore when you feel ready. I've pulled out a few links as a starter for you

Looking after someone with cancer | Macmillan Cancer Support

Practical support when you look after someone | Macmillan Cancer Support

Emotional support for carers | Macmillan Cancer Support

Please also remember to take time to care for yourself here too. You need to take "me time" to help keep your own batteries charged. it;s not selfish. It's essential so go for that walk, go to the gym, go for that coffee with a friend, whatever you would normally do to help you feel like you.

For now, I'm sending you both a huge virtual hug. Stay strong.  Remember to breathe.

love n hugs

Wee Me xx

Thank you. 

It's been very crazy since I posted the original message.

Since then we were told that following the biopsy on the lymph nodes it came back that it wasn't cancer but a reaction to the covid vaccine,  we were very optimistic and the opportunity for a full leg amputation was back on the table,  following this there was a mri scan that didn't show signs of cancer even though these areas showed up as hot spots on the pet scan, so ot was back to having a ct scan and after all the hope and anticipation once again we were heartbroken because the cancer is most definitely in his lungs.

We were told yesterday that we should be able to see Christmas and New year but who knows after that. 

Devastated is not the word.