Dad <3

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My dad has recently been diagnosed with cancer after a misdiagnosis, back in March he had a lump apear behind the knee it was causing him alot if pain so he took a trio to a&e where he was told he had a cyst that would go away on its own, sadly this wasn't the case and his leg got worse pretty quick and he could no longer walk so he called for an ambulance and back to hospital and checks were done and he was told he has a tumor ( sarcoma ) in the knee was sent home again after 3 weeks during this time a referral was made which took another 3 weeks finally he is picked up and taken to Stanmore hospital and he is told his cancer has spread and nothing can be done and that he actually has months to live if that!!  The reason for my post is because I don't no what to do an I feel like I am going out of my mind this can't be happening it can't be real i can't accept that nothing can be done I want my dad to get better I don't want him to go I can't stop crying i try but I can't and I feel alone i have no one who understands i need someone who understands i don't no if it will help i just need something to feel less alone right now my poor dad he never thought it would be this and now he is bed bound just waiting for that dreaded day, I want to be with him cos I don't want him alone but its so painful to watch what is happening to him, he says he isn't scared but I'm sure he is an I hate that, my mum also has cancer and has just had her first chemo today so she can't visit him now or really be around people as she is vulnerable I'm just lost really and its only going to get worse I've tried to call a doctor I've tried to find groups but this is all I can find , I need help i can't do this I don't no how.

  • Hi Elz,

    sorry to hear the news about your parents. I’m going through a similar situation with my dad. He was diagnosed with pancreatic cancer at the end of last year and had responded really well to chemo, so much so that 2 months ago he was given 3-5 years. Yet 2 days ago he received his scan results showing it has spread and he now only has months to live. Like you, I’m struggling to come to terms with it and the thought of losing my Dad breaks my heart. 

    I’ve also been looking around for support but have no one who understands and can’t find any groups either. I do find that writing it out on here does help me get it off my chest though, so maybe we could help each other?

    As much as your Dad is bed bound, try and make times with him fun and memorable. Maybe just watching a movie together or a hobby that you both enjoy that can be done seated. Try and keep times together as normal as possible for as long as possible. Stay positive while you’re together and try to avoid constantly talking about the situation. These are things that I’ve found have helped me. Don’t get me wrong, it’s still bloody hard, but anything that might make it just that tiny bit easier. 

    Hope I could be of some help and I wish you and your parents all the best x

  • Hey 

    Thank you for your reply, I'm so sorry to hear about your father I wish and pray for things to be different and that he can get better..

    Sadly my father passed away on Monday the 12th September Disappointed  I was by his side to the end and I am now feeling traumatised with what I saw, I close my eyes and all I can see is my dad's last moments I'm hoping this image fades, I would never of left my dad to die alone so I'm glad I was there with him to comfort him I'll deal with the after affects just finding it so hard at the moment it's all still so raw and it's happened wat to fast.

    It's been nearly 5 days I miss my dad so much i wish I could go back in time to be with him again.

    I am here for you if you ever have any questions or just need to talk if I can help i will.

    I never found any support groups really and I don't find this group much help either I wanted to find a group in person to meet and talk maybe cry and just no that we are not alone even talking on the phone i feel would of been better then this as I'm not good with writing things out so excuse the typos or incorrect grammar.

    Reach out any time I'm here xx

  • Oh my god, I’m so sorry to hear that. That’s awful news. 
    I’m sure that image of your dad will fade and you’ll be left with all the fond memories you made together. 
    It’s only natural to be finding it difficult and to miss him so much. Take the time to grieve and spend as much time with family and friends as possible. You’ll get through this, stay strong!

    I completely agree with what you’re saying about meeting in a group to discuss things. That’s something that I would like to do but can’t find anything that’s for family of cancer patients. It’s a shame really

  • Hi Elz I hope you don't mind me connecting.y dad was also diagnosed with incurable pancreatic cancer last year was given a year. Its warming to find someone in a similar position to me. I empathise for how hard it is in terns if time and the unknown. Dad has  December if we go with the prognosis but as you know things can always change , which I find the hardest.

    Hope we can connect and support eachother

  • Sorry was for Ruby!

    Elz thoughts are eith you so sorry x