It's all happened so fast. After he was admitted to hospital with headaches and loss of coordination the scans picked up cancer on his kidney, with secondaries on his brain. Before then he was a fit, active and healthy 50 year old. That was six weeks ago, since when he has undergone two weeks of radiotherapy and spent some time at home with his family Despite having to use a wheelchair, there seemed to be a little improvement in his movement. Then suddenly a week ago he was back in hospital again, very weak, his blood sugar levels very high, and the news that there were more tumours in his body. Yesterday the results of the team meeting were that the cancer was so aggressive that there was nothing that could be done for him. This situation has all happened over six weeks. Throughout this recent stay his wife has been with him every day, but yesterday, along with other family members, including his brother, we took turns to visit him. It was the hardest thing for all of us, to see him lying almost motionless, only able to whisper the occasional word. He knew I was there, gripped my hand weakly and when I went to kiss him goodbye he mouthed 'love you'. He even joked a little with his brother, then told him he just wanted to go to sleep. Today we may see him again, depending on the circumstances. I believe there was talk of moving him (presumably to a hospice) but that he was probably too weak to survive the journey. His brother and I are both experiencing these feelings that it is all unreal and we will wake up at some time from this nightmare. For both of this it is particularly difficult as my husband died 10 years ago, from the very same cancer. Now his brother and all the grandchildren will have to be monitored as it is possibly genetic. The family are supporting each other, and we all have good friends for support too. Like all of them, I am devastated and very traumatised. I live alone and am in my late 70's. Sharing this on the forum is helpful as I know there are many others who have had similar experiences.. What will today bring? How do we deal with this?
So sorry to read these.. sending love to you and your family.. don't think about tomorrow and just keep putting one foot in front of the other.. at times I have felt like I am walking through cement and gasping for air, like I can not go on...but we have to for the one(s) we love. To provide their care, support them or be supported by them in some way, just keeping on going. I often struggle to do something for myself when I get an hour off, but I say to myself, mam would give anything to have this hour in her greenhouse or in her garden instead of laying in that profiling bed dying, so I force myself with thoughts like that to keep going...I doubt anything I have written helps in anyway. I hope someone can offer your so words or wisdom or encouragement. X
Thank you for responding Birdy 789. Just back from the hospital again. He's fading fast and receiving palliative care. He did grip my hand tightly and tried to speak a little. His brother and wife spent some time with him, then me. After dropping me off at home his brother has returned to the hospital.. We are all distraught. We want him to just go gently now, but to lose such a wonderful person is heartbreaking and it's going to happen very soon.
This whole process is so very traumatic. Its a roller coaster of emotions. Even when you get to that point of hoping they pass quickly and peacefully without pain, then lies the next stage, of life without them...the next dose of trauma.. but the one thing I will try to look for at this point, is that their suffering has ended. I Hope that will bring me, you and everyone in this situation a tiny bit of comfort.
Thanks again for your support. This is how I hope to see things eventually, but at the moment my positive nature is depleted and my thoughts all over the place. I have just called the Macmillan support number and poured it all out to a very kind man. This has been very helpful, as is the fact I can be in touch again when I need to at any time. Sharing with a sympathetic stranger who understands the situation and offers more support when needed has been a good move, both online and by phone call.
He's gone. Just six weeks from the diagnosis my lovely eldest son passed away in hospital around 4am this morning. There's little I can say at the moment. At least I and his close family spent time with him yesterday and were able to talk to him and to get some reactions. It was quick and peaceful. The next part will be very hard.for us all.
I am so incredibly sorry for the loss of your dear son. There will be little comfort but the blessing of a peaceful passing with your family there is the best you can give each other.
sending much love and sympathy,
Louli
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