Feeling lost

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My husband has 2 tumours in oesophagus, spread to lung & various lymph nodes, it’s inoperable & incurable,he’s had a stent fitted which hasn’t really helped, he say he can’t eat because of the pain but I feel it’s a mental block. He has lost so much weight in 6 weeks he’s lost 19 pounds, he hasn’t got any drive and it saddens me that he doesn’t seem to have any time for me. 6 weeks ago we were the happiest couple, on holiday having the best time. Oncologist said his chemo would start in two weeks, when we hadn’t got appointment I called and he wasn’t down for chemo so it’s starting 2 weeks late, I think this has pushed him into depression but he won’t talk to Macmillan. I feel helpless & hopeless but also guilty when I get frustrated with him. I don’t want my memories of him to be negative ones when we have had the best 14 years of my life. How do others hold it together. Sorry to waffle but I feel so alone in this. 

  • Hi Pessey, I'm sorry to hear about your husband's diagnosis. How are you coping now? My husband also has terminal oesophageal cancer, and only has weeks to live. It is horrendous, and there is nothing that I can say that will change that. Depression and anxiety is definitely a factor. Would your husband consider talking to his GP or palliative care team and getting some anti-depressants? My husband did and it has helped. I think for me it is about readjusting my expectations and finding joy where ever I can in our relationship - if we hold hands on the sofa, if we laugh at something on TV, if we joke about how fat the cat is looking. All of that is still precious, even though we can't go out anymore or do anything. Where is your husband being treated? I would also recommend Maggies - they have drop in centres at a number of hospitals and I have found it really helpful to go in there, have a cuppa and a chat. Sending you hugs and kind thoughts, Creina 

  • Thank you for replying it really moved me. Had to take him to A& E Sunday as he’s lost so much weight, and can’t swallow. He’s having stent checked today, I can only see him for an hour a day due to restrictions. I just hope he’s up to chemo which starts on Monday, but I have my doubts. I just want him home to make a few more memories while I can. Everyone is being so kind, but at times it overwhelms me and I feel guilty that I want time alone to think things out. I have spoken to hospital re depression.

    I wish you & your husband the best, there’s nothing anyone can say to take  this pain away.

    What I can’t understand is 8 weeks ago we were on holiday having the best time. It’s so cruel.

    Take care and if you have time stay in touch xx