Very mixed emotions

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My husband is in our local hospice,he was admitted last week.We know he is very ill,but we do not have any timescale.He can’t now do anything for himself,he’s very weak,not strong enough to stand,can’t feed himself and can only swallow very soft food without choking.He is very confused and has regular panic attacks,particularly when he’s just woken up.All these symptoms have come in just over  a week,he is also catheterised .I tried so hard to look after him myself at home which he wanted.Our lovely district nurse put a care package in place for us,but my husband didn’t like it.I am now visiting him daily in the hospice,he has had a terrible weekend because they are trying to sort medication for his anxiety and panic,but he thinks they are trying to poison him.The hospice is fantastic and the staff wonderful,they are only trying to keep him safe and comfortable.He is so difficult and out of character, I really can’t take much more.I have a wonderful son who helps but no one else. I am waiting to speak with his doctor and really need some sort of idea how much longer he has got. I am frightened that they will stabilise him and send him home.I am completely confused in my emotions,realistically I just want it all over,but then feel awful for thinking that.He has no quality of life and hates being so dependent on others for all he care.

  • Sending you lots of loving thoughts Alice, I know it’s not much help but sometimes just knowing others are thinking of you and understand those feelings makes it less lonely.

    Grasan

  • Thank you,best of luck for you and your husband.

  • Myself, brother & Father are currently caring for my mum who is on end of life. Watching them suffer and be fearful is exhausting. We think it may be too much & hospice be the next place as things are getting quite serious for us. 

    My thoughts are with you, big virtual hugs 

  • It’s awful isn’t it,my husband is so confused and frightened.He just wants it all over but may well have a few more weeks.He is probably coming home but with a full care package.The problem is he gets more confused seeing different people.I am very grateful for all the support we have had and I know there are many that don’t get it.Ideally he wants me to look after him but he is very needy and not easy and I can’t manage myself.He now has a syringe driver because he wouldn’t take his medication but he tries to take it out.Thinking of all of us in this horrible situation,may it be as peaceful as possible.