My mum was diagnosed with lung cancer in April this year. She had a lot of pain in her left arm snd we originally thought it was coming from her scar from previous breast cancer .. . She started on radiotherapy in May snd we were awaiting a scan to see what the next treatment was. Mum otherwise is incredibly fit and nothing else wrong with her. Well 2 weeks ago her leg collapsed and she lost bladder control. Her tumour hadn’t responded to radiotherapy at all and has grown into her spinal cord. She is paralysed from mid chest down and they said there’s nothing else that can be done. I’m absolutely devastated. I’m in shock and totally heartbroken. I feel sick all the time. She is too sore to sit in a wheelchair because the pain is horrific when they try to move her and from being so active to being stuck in bed is awful to watch. They say that if they increased her painkillers then she would be sleepy . Mum still wants to be able to chat snd do her crosswords snd watch a bit of TV . I’m waiting for consultant phoning me back. The ward mum is on is run by GP s and I feel they the staff think it’s unusual for me to want to talk to the consultant about prognosis and expectations. The consultant apparently hadn’t visited the ward since before covid . I just feel a bit let down and lack of communication is not good. Maybe it’s because I work in the medical field myself , you get a lot less info bring a relative ! Any ideas about coping skills, how to keep my spirits up for mum would be appreciated xx
Hello Fi 21,
I am so sorry reading your post and my heart truly goes out to you and your family. What your going through is so terribly tough and i understand too well how difficult it can be finding the information and support you need to help your mum best.
I myself lost my dad to cancer april of this year and prior to that had to navigate my way around the cancer / care community to find the best support for him, fortunately we had an extremely supporitive and informatibe team, having said that there were times when i needed second opinions on things like paid medications (as it could be weeks between consultant appointments and Dad's pain fluxuated considerably). One resource I found really helpful was in fact the Macmillan support line who have nurses available to talk you through pain management options tel:08082391492.
Either way it sounds like you are doing everything in you power to support your Mum and you should not feel let down during this very difficult time, so if there is anything me or the community can do to help you please do reach out.
Finally and to touch on your point about coping, for me and Dad we talked a lot, we laughed and we made as many memories as we could.
I wish you all the best and am here if you need to talk.
Lucie (aka Juicestool)
x
Thank you juicestool for taking the time to reply with such a lovely message. I spoke to the consultant on Monday snd she was really lovely and answered my questions. Mum seems more settled the last couple of days snd seems to be getting used to the new ‘ normal ‘ routine, it still sickens me to see her being unable to move , but my mum is incredibly strong snd brave. We are looking at old photos snd taking my daughter in to see her and taking tasty nibbles for her . I just hope they can continue to manage her pain . I lost my lovely dad too 5 years ago with cancer . It’s so incredibly hard. Sending my love to you too xx
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